I HATED the ending. As far as endings go, it was such a copout.
I liked the book because it made me think about myself and my beliefs. WRT the arthrogryposis community, it was relevant because there's a parent in the arthro community at the moment who is getting her child every surgery that the doctors say will make him walk. It goes against conventional wisdom that says that surgery is the last option because of bone development and the recovery period. So whereas previously she was seen as a pioneering, proactive person, she is now getting a lot of censure.
I didn't like it because as a mother of a child with a disability, I was anxious because they couldn't put a name to what she had. Once I found out, Mother Bear kicked in and said, "is that all? We got this." She also had febrile seizures and frequent ear infections, so for the first few years, I was in the doctor's office/ER at least twice a month. It's kind of galling to see someone with NO children, much less one with a disability, try to emulate our mindset. And yes, I read the book and thought, "She has a grasp on the issues but not the feelings." That's what caused me to look up her bio.