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stupidstupidme (original poster member #11888) posted at 10:12 PM on Wednesday, June 19th, 2013
We are back in again! Bunt had a Bronchoscopy on Monday morning. His lungs are pretty junked up and inflamed. He did well with the Bronch, and had a picc line put in for IV meds.
This new children's hospital at Johns Hopkins is BEAUTIFUL. We were lucky enough to score a huge corner room with beautiful views of the city, and tons of space for Bunt to play.
The new menu is just like room service. You call up and order what you want, when you want. It's like a high end hotel!
LOL - as far as hospital stays go, I guess if we have to be here two weeks, we sure are lucky to be in this one!!!!!
Confront the dark parts of yourself, and work to banish them with illumination and forgiveness. Your willingness to wrestle with your demons will cause your angels to sing. Use the pain as fuel, as a reminder of your strength
August Wilson
jo2love ( member #31528) posted at 10:17 PM on Wednesday, June 19th, 2013
(((Bunt)))
Sending mojo and good thoughts.
meaniemouse ( member #10798) posted at 10:19 PM on Wednesday, June 19th, 2013
Praying for you and your baby. Hope everything goes well. Take care.
Act as if what you do matters. It does. William James
scarredforever ( member #23875) posted at 10:25 PM on Wednesday, June 19th, 2013
Glad to hear your baby is getting good care.
"Forgiveness is the fragrance that the violet sheds on the heel that has crushed it."
Mark Twain
Me-BS 54
Him-WS 55
Together 35 years
6-5-06 Day of Reckoning
Familiarity breeds contempt.
nowiknow23 ( member #33226) posted at 10:27 PM on Wednesday, June 19th, 2013
(((((bunt)))))
Hoping all goes well and the treatment spoils you two rotten.
You can call me NIK
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
Dreamboat ( member #10506) posted at 10:29 PM on Wednesday, June 19th, 2013
You post makes me 
and 
at the same time 
I was worried when I first saw the post, but this seems "routine", at least for you guys. It still sucks, poor kid
And it's hard to dance with a devil on your back
So shake him off
-- Shake It Out, Florence And The Machine
caregiver9000 ( member #28622) posted at 10:32 PM on Wednesday, June 19th, 2013
I was thinking the same as Dreamboat...
Glad you are getting the "spa" treatment at the hospital.
Prayers for successful treatment.
Me: fortysomething, independent, happy,
XH "Stretch" (and Skew!) ;)
two kids, teens. Old enough I am truly NO CONTACT w/ NPD zebraduck
S 5/2010
D 12/2012
stupidstupidme (original poster member #11888) posted at 10:46 PM on Wednesday, June 19th, 2013
Yeah hey... it isn't great - no one wants to have CF or be in the hospital, but the fact that we are helping him - treating his lungs, and he feels fine - helps.
Gotta make the best of it. This is routine - it's his fourth bronchoscopy and fifth hospitalization.
Today we played hospital Bingo, he went to the gym, we played board games and Xbox, and now he's watching a movie. We would rather be home, but.... this isn't too bad
Confront the dark parts of yourself, and work to banish them with illumination and forgiveness. Your willingness to wrestle with your demons will cause your angels to sing. Use the pain as fuel, as a reminder of your strength
August Wilson
metamorphisis ( member #12041) posted at 11:20 PM on Wednesday, June 19th, 2013
SSM, I am glad to hear he's doing well even if he has to be there
Not to start a health care debate (and I'll have to mod all of you if this does 
)..
When ds was admitted to the Children's Hospital in Orlando on one of our vacations I was BLOWN AWAY. It was as nice or nicer than the hotel we were staying in 
. Disney characters came to his room, he had a huge flat screen and an Xbox. They apologized for making us wait in Emerg because someone had come in with a heart attack. I am serious here.. I thought she was kidding. We had only been there about 10 minutes and they had come in as soon as the ambulance brought him in.
It was just a whole new world compared to what I am used to here.
Go softly my sweet friend. You will always be a part of who I am.
woundedwidow ( member #36869) posted at 11:34 PM on Wednesday, June 19th, 2013
SSM, sorry he has to be in hospital, but Johns Hopkins is the BEST! They saved my life back in 1987, so they'll always be my first choice even tho I live in VA now. I hope Bunt improves steadily and "enjoys" the stay as much as possible. Are you in the room with him? Hope so, 'cause the surrounding neighborhood is dicey at best. Best wishes to both!
Be careful what you wish for the most - you may get it.
Deeply Scared ( Administrator #2) posted at 12:02 AM on Thursday, June 20th, 2013
(((SSM & Bunt)))
Loving thoughts to you both.
"Don't give up, the beginning is always the hardest." My Mom:)
My tolerance for stupid shit is getting less and less.
Catwoman ( member #1330) posted at 12:11 AM on Thursday, June 20th, 2013
You are so fortunate to be so close to a world-class medical facility. Yeah, it sucks, but it would suck more if you were out in the sticks at some county hospital vs. where you are at.
Cat
FBS: Married 20 years, 2 daughters 27 and 24. Divorced by the grace of GOD.
D-Days: 2/23/93; 10/11/97; 3/5/03
Ex & OW Broke up 12-10
"An erection does not count as personal growth."
Kajem ( member #36134) posted at 12:12 AM on Thursday, June 20th, 2013
(((((((ssm)))))) and ((((((bunt))))))
Sending love and more hugs,
K
I trust you is a better compliment than I love you, because you may not trust the person you love, but you can always love the person you trust. - UnknownRelationships are like sharing a book, it doesn't work if you're not on the same page.
TrustNoOne ( member #16591) posted at 3:13 AM on Thursday, June 20th, 2013
(((Bunt))) & (((SSM)))
You are blessed and fortunate to be in a state of the art, innovative, and cutting edge facility.
I feel the same about our Rady Children's Hospital here. Top Notch.
Innocent children afflicted with tragic illnesses deserve our very best.
Thoughts and prayers for the Bunt.
deeplysad ( member #16590) posted at 3:23 AM on Thursday, June 20th, 2013
Me: BW - I'm much too young to feel this damn old
Him: FWH - Midlife crisis with a pathetic porn wannabe
D-Day: August 2004; Lots of false R until February 2005.
Crushed1 ( member #6449) posted at 4:25 AM on Thursday, June 20th, 2013
Hope Bunt gets well soon. (((Bunt,family)))
~~"You can't run away from yourself"!!! Me to my H when he descended into adultery insanity.
~~Prov.15:13 "By sorrow of the heart the spirit is broken"
~~"The day breaks-your mind aches"
~STRENGTH~PEACE~HOPE~FAITH
simplydevastated ( member #25001) posted at 3:09 PM on Thursday, June 20th, 2013
Sending (((HUGS))) to you and Bunt.
I'm so sorry he has to be in the hospital, but he is in the best. That sounds more like a resort than hospital
My daughter had to be hospitalized due to asthma for almost 4 days. She was a tough patient. 
She had Bugs Bunny and Daffy Duck come in for a visit (We're close to Six Flags), the hospital staff was great and the kitchen staff was hilarious when I ordered her blueberry themed breakfast 
I never left her for a moment and that was just asthma, I don't know how you and Bunt do it with CF.
More (((HUGS)))
Me - BS, 40 (I'm not old...I'm vintage)
Two Wonderful children - DS11, DD8
Getting my ducks in a row for divorce... finally (4+ D-Days too many - listed in profile.)
stupidstupidme (original poster member #11888) posted at 3:19 PM on Thursday, June 20th, 2013
Thanks
I am just so glad we got that bigger room. At first they put us in a smaller one in the middle of the hall. I walked around the floor and saw the empty corner one, and jokingly asked if we could be moved. I'm so glad I did!!! 
Two weeks is definitely a long time, and having him come home for the last few days of it is an option, but I'm not sure I'm comfortable with that. His picc goes into a main blood vessel, there are three IV meds he is getting right now, plus everything else - treatments, etc... little bit daunting for me with a seven year old.
Confront the dark parts of yourself, and work to banish them with illumination and forgiveness. Your willingness to wrestle with your demons will cause your angels to sing. Use the pain as fuel, as a reminder of your strength
August Wilson
Faithful w/Love ( member #33128) posted at 5:08 PM on Thursday, June 20th, 2013
BS(ME)41 WH(HIM)38
DD 21 and DS 16
Separated Aug 2012
Moved back home Oct 31 2013
Separated again June 2014. Heading toward divorce.
False R. Still Lying.
"You never know how strong you are until being strong is all you have left"
osxgirl ( member #8795) posted at 7:31 PM on Thursday, June 20th, 2013
SSM -
With a picc line, if staying is an options I would stay, definitely.
A couple of years ago I was in the hospital for a week with cellulitis after hernia surgery. They had trouble getting an IV in me, and on about the 3rd or 4th day, they put in a PICC line.
They definitely put the fear of God in me when they did. The techs that put it in gave me instructions on what the nurses were supposed to do when they used the PICC to take blood or deliver meds (flushing the line both before and after), and told me I should make sure they did - a PICC line can very easily lead to an infection if it isn't handled correctly, and the infection from that is much more dangerous because it goes directly into the blood.
Not trying to scare you - just thinking it would be better to stay there with the PICC if you can. I know with me, they had talked about letting me go home sooner than the week I was in, but the doctor decided he did not want me to go home until they took the PICC out.
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