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Colitis

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 AFrayedKnot (original poster member #36622) posted at 1:23 PM on Saturday, July 20th, 2013

I went to the doctor yesterday and had a CT scan. They diagnosed me with colitis. I think I have had it on and off for a while.

Does anyone have experience with it? Any dietary suggestions? Any other suggestions?

BS 48fWS 44 (SurprisinglyOkay)DsD DSA whole bunch of shit that got a lot worse before it got better."Knowing is half the battle"

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tushnurse ( member #21101) posted at 4:08 PM on Saturday, July 20th, 2013

As a very experienced GI RN here I have a few thoughts. First a CT scan alone cannot diagnose colitis. It can show inflammation but not much more that inflammation can be caused by many things. You need a colonoscopy for a definitive diagnosis. You need a good Gastroenterologist.

That being said most inflammation is treated similarly. Steroids gut rest and hydration.

You should eat a very bland low residue diet Google it. It's anything your body doesnt have to work hard to breakdown. Make sure you are getting plenty of fluids as well.

Depending on the type of colitis you really have will determine how it's treated. If you do have a true Ulcerative Colitis you will need to be on immunosuppressive meds and have to have colonoscopies every 2 years. If it is caused from infection then a round of the appropriate antibiotics can fix you forever. If its a blood flow issue then you may have to have a special procedure similar in nature to a cardiac cath to restore flow.

Stress upset and poor rest will aggravate UC and make it rare it's ugly head. Google the Crohns Colitis foundation tons of good info and support there. Pm me if you have more questions.

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
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jo2love ( member #31528) posted at 5:43 PM on Saturday, July 20th, 2013

(((Chico)))

When I was diagnosed with crohns, it was bad. The dr had me on meds, ensure drinks, lots of water, and baby food. Slowly I introduced regular foods to pinpoint which set it off (besides stress). Rice, red meat, nuts, seeds,etc..were all off limits. Also, having a good sense of humor about it and deep breathing helps.

Sending you mojo and strength.

[This message edited by SI Staff at 11:43 AM, July 20th (Saturday)]

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 AFrayedKnot (original poster member #36622) posted at 11:18 PM on Sunday, July 21st, 2013

Thanks for the suggestions. I am still kinda in the dark. I only received a call from the on call Dr at my primary care. I have a follow up this week. They have me on 2 different antibiotics and liquid diet for two days then slowly introducing foods.

I guess I will find out more this week.

BS 48fWS 44 (SurprisinglyOkay)DsD DSA whole bunch of shit that got a lot worse before it got better."Knowing is half the battle"

posts: 2859   ·   registered: Aug. 28th, 2012
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jo2love ( member #31528) posted at 11:42 PM on Sunday, July 21st, 2013

Try to take it easy, Chicho. Please let us know how the dr appt goes.

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Jrazz ( member #31349) posted at 11:54 PM on Sunday, July 21st, 2013

(((Chicho)))

I went though all that testing too.. I just have low grade IBS. That in and of itself is a pain, so I'm so sorry you have to go through all this. Sending good thoughts.

"Don't give up, the beginning is always the hardest." - Deeply Scared's mom

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tushnurse ( member #21101) posted at 2:53 PM on Monday, July 22nd, 2013

Chico, make sure you stick to the low residue diet in the meantime. This will save you belly pain, and cramping.

It sounds like they suspect some sort of infectious process since the antibiotics. If that's the case you will start to feel better in a few days. The one antibiotic that they use to treat that can cause some strange side effects, a bad taste in your mouth, or things having a metalic taste. So know that if you are having that it's the medication. Not you...

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

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NotDefeatedYet ( member #33642) posted at 8:09 AM on Tuesday, July 23rd, 2013

I had ischemic colitis. Had to get a colonoscopy and then an angiogram from a vascular cardiologist. The doctors said it wasn't seen often in someone my age. They chalked it up to stress. It was only a few weeks after the affair thing came out, so I guess that was the cause. Get a proper diagnosis. The tests are so fun.

"It's a fool that looks for logic in the chambers of the human heart."

posts: 769   ·   registered: Oct. 17th, 2011   ·   location: Texas
id 6417231
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 AFrayedKnot (original poster member #36622) posted at 9:09 PM on Thursday, July 25th, 2013

Just got out of my follow up. Official diagnosis was diverticulitis.

BS 48fWS 44 (SurprisinglyOkay)DsD DSA whole bunch of shit that got a lot worse before it got better."Knowing is half the battle"

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jo2love ( member #31528) posted at 9:24 PM on Thursday, July 25th, 2013

(((Chicho)))

I'm sorry. Please take it easy on yourself.

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nowiknow23 ( member #33226) posted at 9:43 PM on Thursday, July 25th, 2013

((((chicho))))

You can call me NIK

And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane

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Jennifer99 ( member #39551) posted at 9:44 PM on Thursday, July 25th, 2013

:( Sorry Chico. I hope with your diagnosis they can give you some relief.

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 AFrayedKnot (original poster member #36622) posted at 12:25 AM on Friday, July 26th, 2013

Thanks for the hugs. I am actually feeling great except for the damn antibiotics. And they will be done Monday.

BS 48fWS 44 (SurprisinglyOkay)DsD DSA whole bunch of shit that got a lot worse before it got better."Knowing is half the battle"

posts: 2859   ·   registered: Aug. 28th, 2012
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tushnurse ( member #21101) posted at 12:32 AM on Friday, July 26th, 2013

Well that is a way way way better diagnosis than colitis. Seriously. Once you get well make sure you eat lots of fiber. Fiber is the sponge that keeps things from getting stuck in those pits and pockets (diverticuli). Lots of people will only have one episode. If you have another one though make sure that you see a colorectal surgeon, not just a general surgeon.

Glad you are feeling better!

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
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