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Newest Member: Thoreau79 (61121)

User Topic: Endometrosis
♀ 33690
Member # 33690
Default  Posted: 10:07 AM, November 13th (Wednesday), 2013View ProfileEdit MessagePrivate MessageHomepage

Anyone here having this issue? After months of treating what we believe to be GI related issues my pcp thinks it might be endometriosis, actually I am the one that mentioned it to her since I have a family hx of it.

ME: BS 40
2 boys: 20, 17
DDay #1: October 17th 2011 (A w/ co-worker & visit with 2 "working girls"
DDay #2: September 20th 2013(A w/ girl from Craigslist. Had sex multiple times with 2 women he found on Ashley Madison.
Not s

Posts: 100 | Registered: Oct 2011 | From: Marion, IL
♀ 21101
Member # 21101
Default  Posted: 2:08 PM, November 13th (Wednesday), 2013View ProfileEdit MessagePrivate MessageHomepage

A little (actually a lot) unusual for this to be raring it's head at your age. It usually starts bothing most women in their teens to mid 20's, for some after a baby.

Have you had an abdominal ultrasound? Could be an ovarian cyst/s those suckers can be painful depending on what your hormone levels are doing.

Also have you had a full GI workup? Meaning Scopes top and bottom? If not then don't rule out GI stuff. Something is more common is developing a sensitivity to a certain group/type of food that can cause GI distress that will come and go. Most common in folks our age is a Lactose (the sugar in dairy) intolerance. Food journalling along with symptoms can sometimes que you in if this is the case, or a simpler way is to elminate all Dairy for a few weeks, and see what happens.

Him: FWS
Kids: 18 & 20
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
R'd in about 2 years. Old Vet now.

Posts: 13172 | Registered: Oct 2008 | From: St. Louis
♀ 33457
Member # 33457
Default  Posted: 3:32 PM, November 13th (Wednesday), 2013View ProfileEdit MessagePrivate MessageHomepage

Unfortunately, yes. Developed as a teenager, but without official diagnosis, via laparoscopy, till early 30's. I'm older than you are now, bunni, and some of mine can be seen on ultrasound. For example, one ovary is adhered to my uterus.

GI issues have not been a huge problem associated with it, unless I'm having a really severe flare-up. But I'm not always very observant. A severe flare-up, can including migraines, fatigue, dizziness and nausea too. Just had one of those recently. Not fun!

But Endo can cause a wide variety of problems that wax and wane. It's the scourge of the earth, IMO

I hope you don't have it bunni. Best of luck figuring out what is causing you trouble. :

[This message edited by DixieD at 4:36 PM, November 13th (Wednesday)]

Growing forward

Posts: 1767 | Registered: Sep 2011
♀ 33690
Member # 33690
Default  Posted: 11:28 AM, November 15th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I have had horrible periods for years. Yes I have had the gi work up; EGD, colonoscopy, video capsule endoscopy, stool cultures. I had an abd ultrasound right off the bat which didn't show a lot. They were suspecting a left over gallstone but didn't. I can tolerate lactose usually.
My mother had it twice, in fact she had a partial hysterectomy at 27 d/t endometriosis and then had the rest taken out after 1 1/2 surgery. She had it wrapped around her bowels and had tons of adhesions and scar tissue. I have also talked to a close friend who has been dealing with it for years and she also thinks it might be that as well. I made an appointment with my gyn for next week to discuss it with her. So we shall see.

ME: BS 40
2 boys: 20, 17
DDay #1: October 17th 2011 (A w/ co-worker & visit with 2 "working girls"
DDay #2: September 20th 2013(A w/ girl from Craigslist. Had sex multiple times with 2 women he found on Ashley Madison.
Not s

Posts: 100 | Registered: Oct 2011 | From: Marion, IL
♀ 14576
Member # 14576
Default  Posted: 1:06 PM, November 21st (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

Hi bunni,

I was 23 when I had a hysterectomy. Severe endo. It was on my bowels, bladder, spleen, spine and gallbladder (which had to be removed). A friggin mess.

My 26 year old DD has Stage 4 endo - diagnosed at 17. She's had several "clean-up" surgeries, lost an ovary at age 22 (endometrioma cyst). She conceived my 2-year-old GD via IVF (she also has an angel baby conceived via IVF).

Anyway, 26 yo DD was recently diagnosed with hypertension! This does not run in my family (early onset hypertension). She also has had IBS since she was 17 (we do know that is from the endo on her bowels). Anyway, turns out that the endo has gotten so severe that it's on her liver, thereby inhibiting it from functioning properly (her cholesterol levels are through the roof and she has a great diet), coupled with poor blood flow because of all of the endo everywhere else in her body. She even has endo on her bladder and suffers from cystitis and blood in her urine. She's going to try one more round of IVF after one more clean-up surgery, then the ute is coming out (and most likely the other ovary). Personally, I wish she'd have the hysterectomy now, but she wants to try for one more baby.

Endo can affect every organ in your body - including your heart and brain (from blood flow issues). It is very important that you see a GYN who specializes in endometriosis. Endo cannot be detected via sonography - only through laproscopic surgery.

It was good that you had the GI workup - no matter what the cause of the issue, it should be treated accordingly (PPIs, IBS meds, etc.)

Please KUP - will be praying for you. I sympathize - endo sucks.


Me - 52; FWH - 54
Married 34 years 9/2/17
2 grown daughters-33 & 30
8yo GS,4yo GD & 3yo. GD (DD33) and 5 yo GD & 1 yo GD(DD30). D-day #1 - 1/06; D-day #2 - 3/07
Reconciled! Construction Complete.

Posts: 6205 | Registered: May 2007
♀ 40859
Member # 40859
Default  Posted: 11:17 AM, December 4th (Wednesday), 2013View ProfileEdit MessagePrivate MessageHomepage

I had a full hysterectomy at age 32 due to severe endo as well.

I wish her the best and I hope she gets answers and to feeling better really soon!

Posts: 111 | Registered: Oct 2013 | From: Georgia
♀ 37190
Member # 37190
Default  Posted: 3:58 PM, December 7th (Saturday), 2013View ProfileEdit MessagePrivate MessageHomepage

I just had a uterine ablation done for endo - had it off and on all my life. About six weeks post op now and all is AMAZING in that area

Me - BS original Dday 10-2012, separated June 2014, divorce Fall 2016

Grief, loss and pain taunt her - "you will never be the same." Like a Phoenix rising from the ashes, she rises and spreads her new wings as she brushes off the ashes an

Posts: 772 | Registered: Oct 2012 | From: Out of the ashes
♀ 35214
Member # 35214
Default  Posted: 4:17 PM, December 7th (Saturday), 2013View ProfileEdit MessagePrivate MessageHomepage

I had a LAPH (partial hysterectomy) when I was 34 thanks to endo. I got lucky, though, I got to keep my ovaries. It runs in our family. Mom had to have a total hyst when she was around 36-38 and my sister's total hyst occurred when she was around 32.

Me: BS(45)Him: EX, aka "The Dink"(52). D-Day#1 12/22/11. D-Day#2 5/23/13. Divorced 1/10/14.

New chapter of my life- married 11/13/15 to the man I'd thought I would never find.

Throw me to the wolves and I'll return leading the pack.

Posts: 443 | Registered: Apr 2012 | From: North Texas
Topic Posts: 8

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