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Newest Member: SadDadOf3 (46038)

User Topic: Feeding Tube
gramsbear
♀ 19101
Member # 19101
Default  Posted: 9:24 AM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

Anyone here know about them?
My son just had one put in and hes not doing well.

Posts: 880 | Registered: Apr 2008 | From: mich
nowiknow23
♀ 33226
Member # 33226
Default  Posted: 9:34 AM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

((((gramsbear & DS)))) I have a little experience with this from my mom, and there are some medical folks here who I'm sure will chime in. What do you need to know, honey?


You can call me NIK

"Keep your face always toward the sunshine - and shadows will fall behind you."
-Walt Whitman


Posts: 26516 | Registered: Aug 2011
gramsbear
♀ 19101
Member # 19101
Default  Posted: 10:13 AM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

Just wondering how long he will be in pain.
Also about infections.He has a fever.
It was put in on Thursday.
Hate his Drs.They just blow off questions.
He is diagonosed with gastroperisis.He is 50,and has struggled with eating issues for a few years.Hes also an Above the Knee amputee.
They also say he has achalasia.Or some Drs do others say he doesn't.
After vomiting for over 4 months,being dehydrated and hospitalized 7 times since Nov,he agreed to the tube.
Any info would be appreciated.

Posts: 880 | Registered: Apr 2008 | From: mich
jo2love
♀ 31528
Member # 31528
Default  Posted: 1:24 PM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

(((grams & DS)))

Posts: 36807 | Registered: Mar 2011
purplejacket4
♀ 34262
Member # 34262
Default  Posted: 1:58 PM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

Based on your information it sounds like your son is diabetic. As you probably know gastroparesis is when the nervous system to the stomach doesn't work properly and food doesn't continue down the digestive tract. I'm sure your son tried controlling his blood sugar and was given drugs like reglan and erythromycin. The only other treatment I'm aware of is to place a vagal nerve (the cranial nerve that comes out of the base of the brain and goes to the GI tract) stimulator.

Placing a PEG tube (through the skin into the gut) is one way to try and solve the problem. It puts nutrition directly in past the stomach where mechanical digestion (and good vagal nerve abilities) is needed.

It generally takes a couple of weeks for the PEG site to heal and most people then do fine with it. Most of the problems with these tubes are because most patients that have them have severe neurological brain issues (like strokes or dementia) and those patients will pull the tubes out. Your son, if he is lucid (no brain issues), should be just fine.


Me: BS 45
Her: fWS 48 (same sex partner)
Together: 18 years now (both MDs)
OW: meh so what 40s PhD
DD1: 10/30/11EA; DD2: 11/10/11 Had ONS; TT until 12/26/11; broke NC 6/12; NC again 7/12; R-ish

Posts: 2361 | Registered: Dec 2011 | From: Great Southwest
gramsbear
♀ 19101
Member # 19101
Default  Posted: 2:46 PM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

@purple....no my son is not diabetic.Thats what is so confusing.
He has an infection that they are trying to find.
Talking pneumonia,c-diff or possibly shingles.
Shingles would account for the intense chest pain hes having.They say its not from the tube cause its too soon.
This has been a long road for him.

Posts: 880 | Registered: Apr 2008 | From: mich
gramsbear
♀ 19101
Member # 19101
Default  Posted: 2:51 PM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

PS I wanted him to go to U of Michigan but couldn't keep him out of local hospital long enough.
They have the gastro pace maker.
He is on reglan now but the side effects of that medicine are awful.

Posts: 880 | Registered: Apr 2008 | From: mich
purplejacket4
♀ 34262
Member # 34262
Default  Posted: 3:13 PM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

That is very strange. I agree with you. I'd push for a transfer to a teaching hospital.


Me: BS 45
Her: fWS 48 (same sex partner)
Together: 18 years now (both MDs)
OW: meh so what 40s PhD
DD1: 10/30/11EA; DD2: 11/10/11 Had ONS; TT until 12/26/11; broke NC 6/12; NC again 7/12; R-ish

Posts: 2361 | Registered: Dec 2011 | From: Great Southwest
gramsbear
♀ 19101
Member # 19101
Default  Posted: 3:20 PM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

They are taking him up for a Doppler,checking for blood clots...Hes in so much pain...

Posts: 880 | Registered: Apr 2008 | From: mich
nowiknow23
♀ 33226
Member # 33226
Default  Posted: 3:25 PM, January 18th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

((((gramsbear & son))))


You can call me NIK

"Keep your face always toward the sunshine - and shadows will fall behind you."
-Walt Whitman


Posts: 26516 | Registered: Aug 2011
tushnurse
♀ 21101
Member # 21101
Default  Posted: 3:35 PM, January 19th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

If he has achalasia you need to find a GI dr who is well versed in treatment and care.

It I not uncommon for achalasia patients to be misdiagnosed and mistreated. If he is having extreme chest pain is it related to eating? I would not be surprised if it tht was the case. This is commonly referred to as bird beak esophagus. Causes are unknown but most recent research indicates it is a result of a virus Similar to cardiomyopathy viral syndrome. One of the newest best result treatment methods is injection of Botox at the base of the esophagus.

Feeding tubes are generally simple to place and easy to use with low risk of infection or complication if he has fever, pain, leakage then he needs a gastrin stiudy to make sure it is in the appropriate place.

If he has poor nutrition (which he probably does) then he will heal more slowly and be at risk of complication much more so than the average bear.

I have an extensive knowledge and training in this field so feel free to pm me with questions.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8898 | Registered: Oct 2008 | From: St. Louis
million pieces
♀ 27539
Member # 27539
Default  Posted: 7:58 PM, January 20th (Monday), 2014View ProfileEdit MessagePrivate MessageHomepage

I'm a critical care dietitian and work w feeding tubes daily. PM me w questions if you would like.


Me - 42
2 kids, 9 and 12
D-Day 2/5/10, separated 3 wks later
Divorced 11/15/11!!!!

Posts: 1281 | Registered: Feb 2010 | From: MD
gramsbear
♀ 19101
Member # 19101
Default  Posted: 7:42 AM, January 21st (Tuesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I want to thank everyone who replied to my post.
The hospital sent my son home with no instruction on how to feed,clean or manage the tube.
The home nurse came yesterday and was a tremendous help.
The chest pain he has is supposedly from an inflammation in his soft tissue.
This whole thing has been very overwhelming.
My plan is to get him to the U of Michigan,as soon as I can get him in.
Thank you all again!

Posts: 880 | Registered: Apr 2008 | From: mich
tushnurse
♀ 21101
Member # 21101
Default  Posted: 9:22 AM, January 21st (Tuesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I would be furious, and when things calm down, a nasty letter needs to go to the hospital, and Dr that placed the tube, and to the manager of the department he was Discharged from.

If his tube was a planned procedure, he should have had teaching prior to it, to see and learn what he was going to have, and be dealing with. If it wasn't planned then the nurses at the facility should have done some major teaching, and provided the User guide book that comes with the tube. When I worked in Endoscopy and we placed these for folks that were going home we even went up to the floor the following morning to do one last round of teaching. If his tube was placed through endoscopy, he should NOT have had horrible pain. We usually just gave Tylenol for pain control after.

However if he truly does have achalasia, and his esophagus doesn't relax enough for him to belch, then he may have had air trapped in his stomach, causing pain and pressure.

Just a word of experience in getting in a timely fashion with Teaching Hospitals, if his wait to be seen is a long time, then he may be better off going to the hospital associated with U of MI for any problems. They will consult the appropriate dr's and get him seen in a more timely fashion. Soooo....If he is having pain, or ANY problems with the tube, and you would normally take him to whatever hospital, this time you take him to the teaching one. See what I mean?


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8898 | Registered: Oct 2008 | From: St. Louis
gramsbear
♀ 19101
Member # 19101
Default  Posted: 11:29 AM, January 21st (Tuesday), 2014View ProfileEdit MessagePrivate MessageHomepage

Oh Tush,when I have a little more time,I will tell you the whole story.And its enough to make you sick.This is a well known and well respected hospital,but I know better.
We have an apt with a GI Dr who was recommended by our Home nurse who took her daughter to him.He was trained at U of Mi and had her daughter sent there.Hoping for some real information and answers from this one.
I did call the floor manager and I am not done telling my story to others.No one should be (mis) treated like this.And no one should be so uninformed about what they are doing to you.
Thanks again.

Posts: 880 | Registered: Apr 2008 | From: mich
gramsbear
♀ 19101
Member # 19101
Default  Posted: 11:44 AM, February 1st (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

UPDATE!!!
My son has been at U of Mi since Thursday.
They admitted him and he has a full GI team working on his case.
They are still trying to determine if he has either disease,and are doing tests.
They removed the feeding tube as it was wrapped in the stomach folds.The chest pain he was having is almost totally gone .They said he should have never been released from first hospital with that kind of pain.
He is handling clear liquids and they want to try him on soft foods next.
They have an inpatient test scheduled for Monday.If he is eating and keeping it down he will be released and they will continue to work on his case through outpatient.
They have been so wonderful.A complete turn around from Beaumont.
I am finally hopeful.My son had gone from 218# to his current 147#.I am convinced he was dying from starvation.Just amazing what this place has done in 48 hours.....

Posts: 880 | Registered: Apr 2008 | From: mich
tushnurse
♀ 21101
Member # 21101
Default  Posted: 6:52 PM, February 2nd (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

I am thrilled that he is getting proper treatment. I used to perform the test that is used is diagnosing achalasia and other swallowing disorders, esophageal manometry. It can give tons of info as to what is going on.

Glad they pulled his tube. He is lucky that with the issues he had with it he didn't end up with an infection. Keep us posted. I hope he continues to improve.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8898 | Registered: Oct 2008 | From: St. Louis
Topic Posts: 17

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