Cheating Hurt by Infidelity
Betrayal Wayward Donations lying
Welcome

Forums

Guidelines

Find a Local Counselor

The Healing Library

Media

Contact Us
lies
cover
In Association with Amazon.com
Support
Infidelity -
-

SurvivingInfidelity.com Forum Archives

like us on facebook
You are not logged in. Login here or register.
[Register]
Newest Member: harleyhugs (45741)

User Topic: Hashimoto's thyroiditis
Undefinabl3
♀ 36883
Member # 36883
Default  Posted: 10:30 AM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

So, after 4 failed attempts from my OB to handle my thyroid, i went to an endocrinologist. She ordered a ton of tests....5 viles they took (hate needles) and so being the nosy person I am, I looked up what those tests test for ect...

Between the questions that she was asking and the tests that she is running, she is looking to see if I have Hashimoto's thyroiditis. Doing the bad thing and looking online at symptoms and stuff....it seems like a pretty good fit for me.

Is there anything I should know about all this?


Me: 31 MH
Him: 37 MH
New online find 6/19/14 - shit
Phone Find 11/21/14 - I can't even right now.

Posts: 1818 | Registered: Sep 2012
scaredyKat
♀ 25560
Member # 25560
Default  Posted: 10:34 AM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I have it. As far as I know it's a fancy name for under active thyroid.

But that's as far as I go. I know there are complicated issues involving parathyroid, calcium, vitamin D and osteoporosis, and they need to screen to rule them out, but it IS complicated, hence the advanced degree in endocrinology.

I also have a lump on my thyroid, common, apparently, but they leave it be as long as it's stable in size and under 5cm.


Me-BS-60
HIM-SAFWH-63
Damn autocorrect is responsible for the silly errors, sorry!

Posts: 3776 | Registered: Sep 2009 | From: In my head
Undefinabl3
♀ 36883
Member # 36883
Default  Posted: 10:55 AM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I keep going from Hyper to Hypo on my tests....so at first i was under medicating, then I was over medicated, then I was under again - but my dose didn't change.

The symptoms are what's killing me though. The fatigue, joint pain, ect...I went down the list and had all but 2 of the issues....


Me: 31 MH
Him: 37 MH
New online find 6/19/14 - shit
Phone Find 11/21/14 - I can't even right now.

Posts: 1818 | Registered: Sep 2012
Dreamboat
♀ 10506
Member # 10506
Default  Posted: 11:45 AM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I have hashimoto's, It is an autoimmune disorder and the most common form of hypothyroidism.

Your OB was probably just looking at your TSH which is not directly made by the thyroid and so is not extremely accurate. But it is a cheap and easy test and does give a "ballpark" idea of whether your are normal, hypo, or hyper. The endo will be testing T3 and T4 which are directly released from the thyroid and will give a much more accurate reading of the state of your thyroid.

Many things can affect your TSH levels when you are taking synthroid. You should always take if first thing in the morning with water only and wait at least an hour before eating or drinking anything else -- the longer the better. Never take it with any other medication and never ever take it with a multivitamin or calcium. In fact, it is best to wait several hours after your take the synthroid before taking a vitamin (I take synthroid in the morning and vitamin and other meds at night). Also, my endo insists that I take the brand name med and not the generic. The generic has more fluctuations in the dosing than the brand. And stress can cause your thyroid to whack out.

It may take 1-2+ years for your endo to stabilize your thyroid. Mine had just stabilized mine when dday hit and the stress threw my thyroid levels all over the place. It seemed like every time I saw him (every 3-4 months) my prescription changed. Finally he stabilized it again and I have been on the same dose for several years now. Once you are stabilized the fatigue will be much less. The best advice I can give you is to tune into your body during the time it takes to stabilize you. The first thing my endo asks me when I see him is "What do you think your TSH level is?" If I tell him I feel hypo but the test shows borderline then he may up my meds. But if I feel fine and my test shows slightly hypo then he will likely not change my meds. That is because TSH is not an extremely accurate indicator. My endo only checks my T3 and T4 every couple of years now, not every time I see him so he relies on me to tell him how I am feeling.

Make sure you discuss with your endo all of your symptoms since many of the symptoms can be cause by many different issues. For example, if your fatigue gets better but your joint pain does not, then the joint pain may be caused by something different.

Good luck


And it's hard to dance with a devil on your back
So shake him off
-- Shake It Out, Florence And The Machine

Posts: 17695 | Registered: Apr 2006 | From: A better place :)
peacelovetea
♀ 26071
Member # 26071
Default  Posted: 3:17 PM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I have Hashi's, and have been on Armour thyroid for a couple of years. Stress makes it flare now when its very severe but mostly I am stable and feel SO MUCH BETTER. I thought I was just suffering from being a mom of three poor sleepers, but the foggy thinking, the afternoon near-narcolepsy, and the dragginess are gone. I am no longer losing fistfuls of hair (unless stress goes through the roof!) and my weight has stopped being all over the place. The depression and anxiety are largely gone and I have energy again.

Hang in there through the med stabilization and then you feel better!


BW, SAHM
D-Day: 6/5/09, drunken ONS on business trip, confessed immediately, transparent, remorseful but emotionally clueless
M 11 years, 3 kids
4/12 Tried to R for 3 years, have decided to D
12/31/12 D final

Posts: 542 | Registered: Nov 2009 | From: PacNW
scaredyKat
♀ 25560
Member # 25560
Default  Posted: 3:25 PM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

Make sure they check your vitamin D levels. Mine was extremely low, I had badly aches, my osteoporosis wasn't responding to bisphosphonates and exercise, etc. With initial massive vitamin D therapy and continued maintenance I feel much better, but I can tell when it is low.

I second the advice about taking it on an empty stomach and alone. That makes a huge difference. And you are probably now getting proper diagnostic testing.

I was initially told that I'd probably lose all
Thyroid function within a few years due to this condition but that hasn't been true at all. I have gone from .35 mg every other day to .5 every day in about ten years. No big deal. My lump is checked every other year with no change in 6 years.

Be proactive but don't fret. A good endocrinologist will do wonders.


Me-BS-60
HIM-SAFWH-63
Damn autocorrect is responsible for the silly errors, sorry!

Posts: 3776 | Registered: Sep 2009 | From: In my head
Emotionalhell
♀ 39902
Member # 39902
Default  Posted: 7:13 PM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I was diagnosed with Hashimotos years ago. It is complicated.

My thyroid would ache like a tooth ache along with many other symptoms . No swelling . It would just ache.
When I found out that I have a gluten allergy & started avoiding gluten my thyroid problems starting improving.
I'm not saying this is the case with you. Just that it very complex and so many things effect your thyriod.


Posts: 86 | Registered: Jul 2013
carnelian
♀ 24824
Member # 24824
Default  Posted: 8:17 PM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I was diagnosed a few years ago (after my thyroid had been eaten away). Honestly, it was a miracle if I got dressed most days, my joints hurt all the time, could never regulate my body temperature, and I had 24-7 brain fog. After getting on meds and getting the dosage adjusted, it was like waking up after a years-long nap. It was like I moved back into my body again, really.

Some things I've had to watch out for:

1) Diet. A lower carb diet makes me feel much, much better/well. As I recall, there might be some links between hypothyroid disease and blood glucose + leptin, though I've forgotten the details.

2) Being vocal about what I need. It took a good couple of years to feel like myself again. This could have gone faster if I'd just changed doctors right away and gone to someone who listened to me, worked with me, and asked me how I felt instead of sticking with someone who actually yelled at me for daring to look stuff up online after his misdiagnosis. (But I'm not bitter! ) Make sure to go back to your doc for regular check-ups and let her/him know if you're still experiencing symptoms.

It can really be managed and you can feel okay! Mostly it's just taking little pills at the right time(s) and trying to live as healthily as possible (adequate sleep, eating well and all that jazz).

ETA: Oh yes, and add me to the list of the gluten intolerant.

[This message edited by carnelian at 8:19 PM, April 30th (Wednesday)]


What are you going to do when he leaves you?

Posts: 564 | Registered: Jul 2009 | From: Europe
InnerLight
♀ 19946
Member # 19946
Default  Posted: 8:56 PM, April 30th (Wednesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I have Hashimoto's too. I attended functional endocrinology seminars where the speaker said if you have Hashimotos you must avoid gluten and take extra vitamin D. This was a highly respected speaker so I finally stopped eating gluten and it does help me feel less puffy. I use a natural thyroid similar to Armour and have done quite well. It's been about 12 years since my diagnosis. Less fatigue, more stamina and less colds/flus since treatment.

Wanted to add that there are measurements of your antibodies that are attacking the thyroid. I had TPO in the 1000s, but after upping the D and eliminating the gluten I got it down to a few hundred.

I order my own tests through direct labs, and it's about $70 I think for the antibodies test, and about $85 for TSH, free T4, free T3, and reverse T3. If your doctor or insurance ever refuse you because of disagreement over need or cost, you can order your own. My insurance doesn't cover labs at all. I forward my tests to a holistic MD and she has done a good job of monitoring my levels and adjusting my prescription. I've mostly done really well.

Standard med says that there is no point in knowing if you have Hashimoto's or not so they don't run the antibodies test. Either way they are going to use synthroid or levothyroid which is T4. As a nutritionist the antibodies test is helpful to monitor how much the immune system is attacking the thyroid and if dietary interventions are making a difference (ie no gluten).

Not everyone is a good converter of T4 (inactive) to T3 (active), so some people don't do well on synthroid or levothyroid alone. Some also take cytomel which is T3. Others like me take armour thyroid or nature thryoid which is from pig thryoids and contain T4 and T3.

Selenium is important, as it is a co-factor in the conversion from T4 to T3. Eating 4-5 Brazil nuts a day gives you enough selenium. Some people need iodine which you can get from kelp tablets. Iodine is part of the thyroid hormone. Lumps may be a sign of low iodine. You can get tested for low iodine with a 24 hour urine collection but you probably would have to go to a functional medicine doctor rather than a standard medicine doctor.

[This message edited by InnerLight at 8:55 AM, May 1st (Thursday)]


BS, now age 54, d-day 6-2-08, divorced after 17 years M and 20 together. In some ways I have not 'gotten over it'. But I am resilient and have created a good life where I am mostly happy.

Posts: 5902 | Registered: Jun 2008 | From: Rural California
Undefinabl3
♀ 36883
Member # 36883
Default  Posted: 9:08 AM, May 2nd (Friday), 2014View ProfileEdit MessagePrivate MessageHomepage

I was diagnosed a few years ago (after my thyroid had been eaten away). Honestly, it was a miracle if I got dressed most days, my joints hurt all the time, could never regulate my body temperature, and I had 24-7 brain fog. After getting on meds and getting the dosage adjusted, it was like waking up after a years-long nap. It was like I moved back into my body again, really.

I hear that...i have been sleeping through my alarm and i NEVER used to do that.

2) Being vocal about what I need. It took a good couple of years to feel like myself again. This could have gone faster if I'd just changed doctors right away and gone to someone who listened to me, worked with me, and asked me how I felt instead of sticking with someone who actually yelled at me for daring to look stuff up online after his misdiagnosis. (But I'm not bitter! ) Make sure to go back to your doc for regular check-ups and let her/him know if you're still experiencing symptoms.

Count me into the 'ignorant doctor' haver. I explained my symptoms to my former PCP and you know what he told me? That I needed to put my foot down with DH and tell him I needed to go to bed earlier and get more sleep WTF?!?!

Lets just say, we switched doctors right after that appointment.


Me: 31 MH
Him: 37 MH
New online find 6/19/14 - shit
Phone Find 11/21/14 - I can't even right now.

Posts: 1818 | Registered: Sep 2012
Topic Posts: 10

Return to Forum This Topic is Archived
adultry
madness  
© 2002 - 2014 SurvivingInfidelity.com. All Rights Reserved.