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Alzheimers / Dementia online support

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ScarlettA1 posted 7/12/2014 14:26 PM

This site is and has been such a great (seriously) benefit to both Didact and I.

Today, we learned that his father has been diagnosed with dementia / alzheimers.

Does anyone know a similar type of site for support for families dealing with someone subject to such a terrible ailment?

Thank you in advance!

mom of 2 posted 7/12/2014 15:32 PM

A fellow SI member (sorry I can't remember who it was ) recommended a site to me when my now late mother was diagnosed with dementia.

Click on the caregiver forum tab. It was a godsend to me!

So sorry about your FIL. You have a tough road ahead of you.

travels posted 7/12/2014 15:41 PM

That was me mom of 2.

It is a great site, but not as great as SI.

mom of 2 posted 7/12/2014 15:55 PM

Yes, travels! Thank you again!

ScarlettA1, the site not only has great resources for care, legal and financial issues, government assistance, etc, but the forums are much like SI. No matter what question or feeling or frustration or grief you and your husband are going through, someone on there has BTDT too. Awesome support!

The only downside I found was the site does not move as quickly as SI so sometimes it may take a day or two to get a response if you post on the forums. However in my experience, no other forum moves as quickly as SI.

sparklezombie posted 7/12/2014 19:31 PM

I am not active on any online support sites but I'm an elder law attorney and deal with families in this situation all day. I would recommend seeing an elder law atty (not any other kind) because while crisis planning can be done, preplanning always leaves the family with more options. I also recommend that my clients get a very comprehensive durable general power of attorney with extensive trust and gifting powers so we can do long term care planning and asset protection planning, as well as other legal docs. Pm me if you want to chat more about it. It's not an easy road and I'm sorry your family is going through this.

ScarlettA1 posted 7/12/2014 21:30 PM

Great replies so far! Thank you.

tushnurse posted 7/13/2014 15:26 PM

While I am sorry to hear of your dad's diagnosis, there are lots of great resources out there.
That forum is helpful, but there are some very real and serious issues to address and the sooner the better. Please visit the Alzheimers association website there are tons of resources that are locally available. I agree with Sparkle you need to see an Elderlaw attorney and get his advanced directives and durable power of attorney arranged sooner than later. It's also time to get out the video camera and get his memories recorded. These will be of great comfort later.

Read all you can and talk about his wishes and desires and make sure that you all his kids and spouse follow what he wants.

((((And strength)))))

ScarlettA1 posted 7/14/2014 07:30 AM

Thank you TN.

ISPIFFD posted 7/15/2014 09:22 AM

During the final year of Dad's journey through Alz hell, I spent a lot of time getting help and support through the forum on alz dot org, website of the Alzheimer's Association. The actual forum is found at 'alzconnected dot org'. Wonderful people with lots and lots of great ideas, answers, and thoughts not only for caregivers of alz sufferers but for the sufferers themselves. Good luck to you, it's quite a journey.

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