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Newest Member: Giupeppe (46032)

User Topic: More medical questions re cognitive functioning
scaredyKat
♀ 25560
Member # 25560
Default  Posted: 9:37 PM, August 10th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

I would appreciate any medical advice anyone has to offer here.

SAFWH is diagnosed Bipolar 2 and ADD. He takes Effexor XR and ritalin. He was diagnosed by a respected neurologist at a teaching hospital after years of being treated as chronically depressed. His personality was always somewhat of an "absent minded professor" type, easily distracted, forgetful, etc. This affected his self esteem considerably. The ADD runs in the family, both sons, his father, etc.
Recently he was also diagnosed with Lyme disease. The only symptom he had was a thumb that was unable to hold his cello bow. He had the same symptom a year ago which was dismissed as nothing by a hand specialist. This year, he insisted on a Lyme titre which was "very high" according to the doctor.

The scary thing is that he seems to be losing some processing skills. He is slower, he is more forgetful. It isn't outwardly obvious, but it is noticeable to me. I don't know if it is Lyme or early dementia, or medication adjustment.

I do find myself getting impatient when I am explaining the same thing for the fifth time. I try hard not to sound condescending. Add to the mix, he is deaf, and uses hearing aids, when he forgets them, it is like the looney bin. Some of the things he thinks I've said are utterly ridiculous

He is only 63. Who do we see? A neurologist? An infectious disease doctor? If it is the ID doc, do we wait for six months to try to get a reliable read on the titre?

Getting old is not for the faint hearted...


Me-BS-60
HIM-SAFWH-63
Damn autocorrect is responsible for the silly errors, sorry!

Posts: 3866 | Registered: Sep 2009 | From: In my head
scaredyKat
♀ 25560
Member # 25560
Default  Posted: 9:39 PM, August 10th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

Oh, I forgot to mention that he is NOT without physical and intellectual pursuits to keep him going. He has hobbies, he teaches part time at a college, and he reads a lot.

But his driving scares me.


Me-BS-60
HIM-SAFWH-63
Damn autocorrect is responsible for the silly errors, sorry!

Posts: 3866 | Registered: Sep 2009 | From: In my head
cinnamongurl
♀ 37879
Member # 37879
Default  Posted: 10:32 PM, August 10th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

Scaredycat, where do you live? Different parts of the coumtry treat Lyme differently. Lyme is no joke! Definitely begin antibiotic treatment asap, do not wait!!! The longer Lyme goes untreated, the more devastating the result!

I would consult with both the neurologist AND the ID and if there is a lyme dr in your area, please see them!! I went undiagnosed for a long time because after the initial tick bite I was treated for only 10 days instead of the recommended 3-4weeks. I was told it was everything from rheumatoid arthritis, to ms. I lost all feeling in my right arm for nearly 3 months,and experienced crippling pain in my joints and muscles. My mood and brain and vision were in pretty bad shape.

I finally convinced my pc to test me almost 9 months later because no matter what we tried, I just kept declining. As soon as I got my dx, I called a local lyme dr, and was seen right away. Ive been lyme free for 3 1/2yrs now, but still frequently experience some of the symptoms. Ive been told by other people who have had long term lyme that they experience these symptoms as well.


Me: 36 fWGF He: 35 BBF and my heart
Together 18 yrs. Many ddays, last one late 8/12 "Healing takes courage, and we all have courage, even if we have to dig a little to find it." Tori Amos



Posts: 514 | Registered: Dec 2012 | From: home with my heart.
cinnamongurl
♀ 37879
Member # 37879
Default  Posted: 10:34 PM, August 10th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

Feel free to pm me. I can answer any questions you may have. I've done a lot of research on the subject.


Me: 36 fWGF He: 35 BBF and my heart
Together 18 yrs. Many ddays, last one late 8/12 "Healing takes courage, and we all have courage, even if we have to dig a little to find it." Tori Amos



Posts: 514 | Registered: Dec 2012 | From: home with my heart.
purplejacket4
♀ 34262
Member # 34262
Default  Posted: 10:57 PM, August 10th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

Ask your PCP to refer him for neuro cognitive functioning testing.


Me: BS 45
Her: fWS 48 (same sex partner)
Together: 18 years now (both MDs)
OW: meh so what 40s PhD
DD1: 10/30/11EA; DD2: 11/10/11 Had ONS; TT until 12/26/11; broke NC 6/12; NC again 7/12; R-ish

Posts: 2360 | Registered: Dec 2011 | From: Great Southwest
scaredyKat
♀ 25560
Member # 25560
Default  Posted: 11:33 PM, August 10th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

Yes, he was already started on a 3 week course of doxycycline. We are assuming this isn't a new infection, but I'm guessing that doesn't really matter?

Dr. PJ, are there differences in damage due to Lyme's vs early dementia? What kind of doctor would do this testing? Could it be a medication issue? I neglected to mention his high BP and cholesterol but of which are only controlled with medication. His diet isn't the best.


Me-BS-60
HIM-SAFWH-63
Damn autocorrect is responsible for the silly errors, sorry!

Posts: 3866 | Registered: Sep 2009 | From: In my head
lynnm1947
♀ 15300
Member # 15300
Default  Posted: 8:36 AM, August 11th (Monday), 2014View ProfileEdit MessagePrivate MessageHomepage

Just a quick question. Is he on cholesterol-lowering drugs? My S/O has ADD and Lipitor caused him to have cognitive problems. Really screwed him up. He stopped the Lipitor a few months back and he's getting back to normal.


Age: 64..ummmmmmm, no...............65....no...oh, hell born in 1947. You figure it out!

"I could have missed the pain, but I would have had to miss the dance." Garth Brooks


Posts: 7518 | Registered: Jul 2007 | From: Toronto, Canada
tushnurse
♀ 21101
Member # 21101
Default  Posted: 8:46 AM, August 11th (Monday), 2014View ProfileEdit MessagePrivate MessageHomepage

Along with neuro for cognitive testing, see if you can see an OT for therapy and training. Speech therapy too, work with cognitive training, and they are good at it.

Along with Neuro, I would suggest seeing a Rheumatologist if you do not have someone in your area that is versed in treating lyme. It sucks, and it is difficult to treat. Proper treatment is key to good long term outcome.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8893 | Registered: Oct 2008 | From: St. Louis
sparklezombie
♀ 40095
Member # 40095
Default  Posted: 11:58 AM, August 12th (Tuesday), 2014View ProfileEdit MessagePrivate MessageHomepage

I would see a neurologist that specializes in seniors with cognitive impairments for the dementia test. I work with seniors for a living, most of whom have a cognitive impairment and not every Dr is created equal. I would seek out a specialist in that area.

Also, in our area, we have a driving simulator at the medical college's geriatric clinic. I recommend to my clients that they have their loved one take the simulation and if they pass, then they can keep driving. Sadly, most don't pass.


BS: Me
WH: Husband
One daughter - 22 months
Married 11.5 years
2.5 false R's.
Status: Divorcing.
You can't pick up a turd by the clean end. Time to flush the toilet.

Posts: 253 | Registered: Jul 2013 | From: Somewhere on the Eastern Seaboard
tushnurse
♀ 21101
Member # 21101
Default  Posted: 12:23 PM, August 12th (Tuesday), 2014View ProfileEdit MessagePrivate MessageHomepage

A Neurologist would be the one to do the testing.
An OT and a ST would also be able to do an in depth where are we functioning at level of evaluation that gives a jumping off point for therapy.
I have to agree about the statins. They can cause a fair amount of brain fog. I have seen it multiple times. Once fairly significantly to the point where the family though grandma had a miracle, because it was stopped after surgery, with a protracted hospitalization including time on a ventilator. When she finally started to turn the corner she was pretty witty, and the kids said she hadn't been like that in years, figured out it was the Lipitor there too.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8893 | Registered: Oct 2008 | From: St. Louis
Topic Posts: 10

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