Amazingly they didn't find it on the first u/s, but positive d-dimmer and MRI show massive DVT (femoral, iliac, and great saph).
She's inpatient on Heparin. Admitting doc mentioned Xarelto, DH hasn't used it because he does emergency medicine. He is reluctant because it's new and the "other shoe" hasn't had time to fall yet.
We need prayers and info on management of massive proximal DVT. I have read everything available on uptodate, I would like to hear anyone's irl experience. And thoughts on xarelto or maybe we should do lovenox?
Dr PJ? Tushnurse? Anyone?
I edit often to fix stuff ☺️
Profoundly grateful Every. Single. Day. that I am blessed with an H with strength, integrity, and compassion, and that he decided to try.
I don't know that med. lovenox for my friend. Long term issues because she waited to late and they could not restore flow to the main vein that was impacted.
Sending prayers for healing!
If you want them to quit stabbing you in the back, then you need to quit handing them the knife.
Also, no filter to protect lungs, etc.
If it were my parent, I would be asking for a transfer.
[This message edited by Pentup at 3:35 PM, August 11th (Monday)]
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
Prayers for your mom. By the grace of God, I still have my DD.
Her DVT is massive and proximal plus idiopathic...so a candidate for long term therapy. She will follow up with vascular guy in a decent sized city an hour from us after d/c.
We appreciate the prayers and the voices of experience. I have been loosing my mind researching all this stuff and Knight has been overwhelmed at work. He's talked to everyone available here has been trying to keep his head above water at work at the same time.
She's still doing well and is in pretty good spirits. We have had some drama that I haven't had the strength to post about yet with her NPD/sociopath husband and his crackhead harem. I'm just trying to keep my focus on my mom and my family right now (kids started back to school this week).
I cancelled scouts and meetings with the church auxiliary I am heading up. I'm in survival mode at the minute and will make apologies to everyone later....
The benefit, such admit is, of dialysis,,is that blood draws are absolutely painless. They are done through a lead in the tubing leading to the machine.
I can't take Xeralto.
The lesson: it goes away. At least she didn't develop pulmonary embolism or have a stroke.
Has she seen cardiology? Atrial fibrillation, a form of irregular heartbeat, can cause blood clots. That's what happened to me. A fib is often treated with drugs.
Or maybe she was sitting too long. Any long car trips or airplane rides for her?
There are at home testing machines for those on coumadin but they are a bitch to get approved through ins. Home health can come out and do her PT/INR checks in the home as long as she stays home health qualified.
I don't know much about inpatient treatment - They may start discuss placing a filter, there has been some recent controversy over one of the filters that are used, and I believe it is the one in the area of her DVT, but I'm not sure.
An internal medicine doc would be my choice for her PCP and a cardi doc who specializes in DVT's and clots ect ...
Believe me if someone has insurance we use Xeralto. Yes it has bleeding risks but I've had several people DIE because they fell or were in a car wreck and they bled out too fast to give them Fresh frozen plasma (which reverses coumadin immediately) or vitamin K that takes days. But hey don't trust me I'm just a physician who practices actual hospital medicine and just spent the last two weeks treating this VERY thing. And I'm pissy too.
Hugs and prayers to you and yours, I really hope they find what works best for her and quick resolution.((()))
The swelling in her leg has gone down some but now it's starting to be uncomfortable at the sight of the clot and she's having pins and needles sensation in the leg and foot. Before it was just numb. She also says she's happy she can feel the floor under her foot again. Hope these are good signs...
Thank you for the prayers, advice, positive thoughts, and hugs.
Dr. PJ, I think he may change her to Xeralto after 3 months... We will discuss it with him when we see him.
I'm working on menu planning right now...for a diabetic, on Coumadin, with hyperlipidemia. Any dietitians with two weeks of meals planned out for someone with these dietary needs?