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User Topic: Anyone been on prednisone ?
Edie
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Member # 26133
Default  Posted: 1:49 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

My previously mild almost non existent asthma has over the last two months turned quite serious, attacks being brought on by cold and exercise amongst other things. Allergens not discovered yet, so it's all been very alarming and too many emergency hospital visits already.

The hospital wants to put me on prednisone to fight this current flare-up, but my anxiety levels are already very high (PTSD type panic attacks when I can't breathe) and so my GP thinks its a bad idea.

The side effects of the prednisone are indeed very nasty (sleeplessness, anxiety, suicide ideation, depression), but it's not clear if everybody suffers them or not.

Just wondered if anyone had any experience of it that coud shed some more light either way.

And any encouragement from fellow asthmatics to a new asthmatic would also be welcome, it's been quite a stressful and dark period, and I'm feeling almost housebound at the moment.


Maybe a long walk in the Hindu Kush would do it?
BW (me) 52
FWS 55
Together 29 years; 2 DDs 15 & 12
Dday Dec 08 (confessed) Feb 09 16 other OW confessed. OW17 tried her unedifying hardest until Aug 09. R'd.

Posts: 5123 | Registered: Nov 2009 | From: UK
absolut
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Member # 37933
Default  Posted: 2:27 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Not asmathic but I was put on it to treat an allergic reaction. I gained 10 lbs in 2 weeks, and it was pure hell. I hardly slept and had seizures.

Posts: 421 | Registered: Dec 2012
pjkmkjm23
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Member # 35778
Default  Posted: 4:49 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

It's a very powerful drug and nearly everyone on it puts on weight....and quite a few seem to develop a crazy appetite too. I take it as a last resort for a form of arthritis I have and Crohn's, and only when I'm flaring really bad. I don't like it because of the side effects but it does work for sure. Absolutely make sure you follow the directions you're given on how to take it and MAKE SURE you taper off of it properly too....it is not a drug you just suddenly quit taking.

Good luck and good health!


Posts: 305 | Registered: Jun 2012 | From: Canada
downunder
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Member # 16631
Default  Posted: 6:10 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I still have some from past use. The typical dose is for three days only. I think the side effects may be more relevant to long term users? I had no side effects and either have my children. It works on asthma, croup and allergic reactions. It is the foulest tasting medicine, even in tablet form.
My daughter had asthma but is outgrowing it. She used to use puffers, when they didn't work it was onto the steroids, no other option. If anything i found it calming because I could finally breathe.




Posts: 609 | Registered: Oct 2007
Undefinabl3
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Member # 36883
Default  Posted: 7:41 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I was on it for like 7 days on a step down method.

DH is on it A LOT because he's got really bad Asthma that is allergy induced.

I got the sleeplessness part, but didnt gain weight and didnt get any of the other stuff with it.

DH got a little moody, but it wasnt bad, and he doesnt sleep well anyway so I couldnt judge that one very well.

And any encouragement from fellow asthmatics to a new asthmatic would also be welcome, it's been quite a stressful and dark period, and I'm feeling almost housebound at the moment.

I am not one, but my DH is and I will tell you that its very scary even from my point of view. DH has had it all his life and so its all he knows.

I had to push DH to go to the doctor and try alot of different variations and amounts of different drugs to help get things under control.

it took years, and it changes still, but at least we have a better handle on it.

The best thing he's done (mostly) so far were the allergy shots. Its made a world of difference. It used to be that if he mowed the yard he would need at least 2 breathing treatments after...now he can be outside all day long and he's fine.

I would strongly suggest getting the allergy coveres for the matress and pillow cases. Just doing that helped DH breathing at night.


Me: 31 MH
Him: 37 MH
New online find 6/19/14 - shit

Posts: 1767 | Registered: Sep 2012
hurtbs
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Member # 10866
Default  Posted: 7:42 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I've beeno n it short term (for asthma and other things like allergies). Short term (5 days or less) other than euphoria, zero side effects for me.


Me BW Him XSAWH
DDays 2006, and then numerous more
Divorced 2012

"In life, unlike chess, the game continues after checkmate." - Asimov
"Be patient and tough; someday this pain will be useful to you." - Ovid


Posts: 15325 | Registered: Jun 2006
idiot85
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Member # 38934
Default  Posted: 7:44 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I take 6 of the soluble ones every morning for 5 days every other month as part of my asthma control- I've never noticed side effects luckily.

Hope my experience is helpful to you

Edited to add- I would never notice increased appetite to be honest so I might get this side effect but it's impossible to tell!'

[This message edited by idiot85 at 8:10 AM, May 17th (Friday)]


BH-29 (me)
WW-28

Multi famam, conscientiam, pauci verentur.


Posts: 575 | Registered: Apr 2013 | From: Old Blighty
simplydevastated
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Member # 25001
Default  Posted: 8:05 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I'm an asthmatic and have been put on it many, many times over the years, including childhood.

The only side effect I've experienced is the increased appetite.

It works wonders for me when I've been super sick (bronchitis ect...) If your GP is concerned, I'd listen. Also, talk to him about Singulair. I mentioned this in Jrazz's thread about her daughter. It's an allergy and asthma med rolled into one. My daughter takes and I used to take it (only because I always forgot to take daily meds, I'm awful that way), but it works great. We never have any issues with allergies and it keeps the asthma attacks under control as well. That's not to say you'll never have another attack, just they'll fewer and farther between. This may be another option for you.

Good Luck.


Me - BS, 39 (I'm not old...I'm vintage)
Two Wonderful children - DS10, DD7
Married, for now... (4+ D-Day - listed in profile.)

Posts: 5854 | Registered: Jul 2009 | From: In the darkest depths of hell!
darkbeast
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Member # 19220
Default  Posted: 8:20 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I was on it for a weird allergic reaction a few years ago. It was the first time in my life that I understood why/how people became addicted to drugs.

It was the greatest thing ever. Whoever developed it should have won the Nobel Prize--for a decade. I've described it as "If Superman and the Hulk had a baby, I was him".

That being said, I was on it for 10 days. The reason it works is that it shuts down your immune system. You don't *need* to sleep but you do need to feed the machine. I was going 100%, 20+ hours a day, 7 days a week.

Then came the day it cleared out of my system. Everything started to move in slow motion. I slept (and dreamed intensely) for hours and hours. It was truly miserable and it came on me quickly.

I remember my first thought when the super-powers were fading was that I needed to find more. That very moment was when I understood how addiction started and how an addict must feel.

I haven't needed or taken any since, but I am always more than happy to talk about my prednisone experience.

[This message edited by darkbeast at 8:21 AM, May 17th (Friday)]


I thought I wanted a career, but I discoved that I just like paychecks.

Posts: 2466 | Registered: Apr 2008 | From: Florida
jennie160
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Member # 29949
Default  Posted: 8:55 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

100% what darkbeast said.

"If Superman and the Hulk had a baby, I was him".

I took a 10 day dose for a recurring bronchitis infection. I felt AMAZING, except for the sleeplessness. The sleeplessness was torture not because I was tired in the morning but because you think you should be tired but you can't sleep.

And any encouragement from fellow asthmatics to a new asthmatic would also be welcome, it's been quite a stressful and dark period, and I'm feeling almost housebound at the moment.

The biggest thing that has helped with my asthma is exercise. You have to start slow because exercise can cause an attack but it can also help prevent them. It helps by stretching your lungs and bronchial tubes so when you do have an attack you are better able to breath. I can't exercise outdoors because allergies trigger attacks so I have to go to the gym.


Posts: 921 | Registered: Oct 2010
stupidstupidme
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Member # 11888
Default  Posted: 9:16 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Wow, I must say I'm amazed by these posts, and I even looked to make sure I read it right - prednisone? Wow.

I have to take at least one round, sometimes two when I get poison ivy. I'm highly allergic. I have never noticed anything, and I'm very sensitive to medication.

My son has CF, and has been on it several times as well, and I've never noticed any difference in him either, but he's on so many meds anyway and is already a hyper kid.


Confront the dark parts of yourself, and work to banish them with illumination and forgiveness. Your willingness to wrestle with your demons will cause your angels to sing. Use the pain as fuel, as a reminder of your strength
August Wilson

Posts: 19732 | Registered: Aug 2006
tired girl
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Member # 28053
Default  Posted: 10:04 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Major sleeplessness, some moodiness.

Can your Dr order you the Medrol dose pack? That can be a little easier on the system.


Me45 Him 45 Hardlessons DS 25,23,20
D Day 1/18/10 his 3/8/2012 mine
"No one can make you feel inferior without your consent." Eleanor Roosevelt

Posts: 5079 | Registered: Mar 2010 | From: az
idiot85
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Member # 38934
Default  Posted: 10:04 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I don't feel any different when I take them but maybe I really am Superman


BH-29 (me)
WW-28

Multi famam, conscientiam, pauci verentur.


Posts: 575 | Registered: Apr 2013 | From: Old Blighty
Nature_Girl
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Member # 32554
Default  Posted: 10:06 AM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

My kids had to take it when they had croup.

I have a child who takes a mild steroid, not pred, for asthma. I think it's saved her life.


Me = BS (Stay-at-home-mom)
Him = EX-d out (abusive troglodyte NPD SA)
3 tween-aged kids
Together 20 years
D-Day: Memorial Weekend 2011
2013 - I DIVORCED HIM, I'M FREE!
http://www.youtube.com/watch?v=RBOJpIwF47Y

Posts: 9830 | Registered: Jun 2011 | From: USA
Edie
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Member # 26133
Default  Posted: 12:55 PM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Thanks everyone for all advice. I am highly encouraged so far by the positive reactions outweighing the adverse (in contrast to the very negative reportage out there on the web generally), but please keep responses coming as I am finding it all really helpful - thank you!

I am sorry that so many of you and your families are fellow asthmatics as these attacks (everything just closing down) have been very scary, and continue in a very debilitating way on a daily basis, so I really do hope the prednisone sorts me out, as currently it feels like my body is attacking itself (in terms of the immune system leaping so vigorously but frighteningly to my defence).

Have any of you done the whole get rid of all carpets, cushions and soft furnishings thing? (That would make this old victorian manse very very cold, but I may have to go that direction).


Maybe a long walk in the Hindu Kush would do it?
BW (me) 52
FWS 55
Together 29 years; 2 DDs 15 & 12
Dday Dec 08 (confessed) Feb 09 16 other OW confessed. OW17 tried her unedifying hardest until Aug 09. R'd.

Posts: 5123 | Registered: Nov 2009 | From: UK
brooke4
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Member # 13581
Default  Posted: 1:04 PM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Oops. Just pm'd you and then saw this - do you know if dust mites are a trigger for you?


Me: BS, 40, Him: WS 41
Married: 15 years
3 children
D-Day: 10/2005

Posts: 1508 | Registered: Feb 2007
jennie160
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Member # 29949
Default  Posted: 1:13 PM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Have any of you done the whole get rid of all carpets, cushions and soft furnishings thing?

My house is all hardwoods and tile. I only have curtains in my bedroom and they are washed frequently. The only other fabric surface I have is my couch which I vacuum frequently. My house is pretty old (1920's) and gets cold, I have learned to dress warm, keep a throw on my couch and have space heater in my living room and bedroom to warm them up when in use.

Another thing that might help is getting your air ducts cleaned and replacing the furnace filter frequently.


Posts: 921 | Registered: Oct 2010
Edie
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Member # 26133
Default  Posted: 1:20 PM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

@ Brooke - no, I don't - yet. I suspect not, previously only animals and chest infections made a bit wheezy, but now.... with the very cold air and exercise reaction I've been having, I don't know. Never had hay fever before either.

@ Jenny - thanks. A lot of our floors are wood and slate anyway, but I keep it well-curtained as an insulating measure. Am not aware that we have air ducts (house is 1850), but we have plenty of ventilation through the old windows . Co-incidental with this period is having run out of oil and not bothering to order more (it was April and May after all!!!!) as thought I would tough it out in the cold until the warm weather came, which it hasn't, so I think on top of everything else, I have asked my lungs to brace themselves too hard environmentally (house colder inside than out) - eventually got oil (and therefore heating), but has made no difference to the frequency of the attacks.

[This message edited by Edie at 1:21 PM, May 17th (Friday)]


Maybe a long walk in the Hindu Kush would do it?
BW (me) 52
FWS 55
Together 29 years; 2 DDs 15 & 12
Dday Dec 08 (confessed) Feb 09 16 other OW confessed. OW17 tried her unedifying hardest until Aug 09. R'd.

Posts: 5123 | Registered: Nov 2009 | From: UK
simplydevastated
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Member # 25001
Default  Posted: 1:23 PM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I could never get rid of any of that. I'm supposed to have plastic on the furniture, no carpets, plastic over my mattress and pillow (like that is comfortable). That's not going to happen.

My reality is: wall-to-wall carpet, uncovered furniture, and two bossy kitties (one who is trying to push me out of my chair as I type).

I had an allergy test and with all of my allergies my doctor told me that I basically only have two weeks a year when I would have a break from my allergies, but I'm also allergic to cats, so I never get a break.

You just have to do what you have to do to feel comfortable. I've lived with asthma all my life, I know which allergies are worse than others so I stay away from those. My cat allergy isn't nearly as bad as my dog allergy.

Attacks are awful. It feels like someone is squeezing my lungs and stopping me from breathing.

Once you're done with the prednisone your doctor will help you get on an asthma prevention plan and you'll most likely only have to go on prednisone when you're really sick (if you're anything like me.)

My current meds are Albuterol for attacks, ProAir twice daily to prevent attacks and I'm supposed to be on Singulair but I'm awful with remembering to take pills daily. But when I was on it, I was in heaven. No allergies or attacks. Definitely something to look into. I also have a home nebulizer for when I'm sick and my asthma is not fully under control.

I hope some of this helps you.


Me - BS, 39 (I'm not old...I'm vintage)
Two Wonderful children - DS10, DD7
Married, for now... (4+ D-Day - listed in profile.)

Posts: 5854 | Registered: Jul 2009 | From: In the darkest depths of hell!
tushnurse
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Member # 21101
Default  Posted: 1:51 PM, May 17th (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Edie, Have you seen a pulmonologist yet?
If not do. If they recommend it, then I would say go for it, with knowing the next 2 weeks may be unfun.

Once the cycle of inflammation starts, it can be very hard to break, and without something like Prednisone it may not. In addition with your asthma I am going to ask some questions that may seem odd but are totally relevant.

Are your asthma attacks at night when you are sleeping?
Many people silently refulx in their sleep and have what is called microaspiration of gastric juices (some acid going into your lungs) this can trigger an attack immediately.

Are you on a proton pump inhibitor medication like Nexium/Prevacid/prilosec?
95% of asthmatics have reflux or GERD. This needs to be treated, even if you don't have heartburn, again for the same reason above, but happening while you are awake.

Are you using an inhaler or nebulizers?
Nebulizers are much more effective in getting the meds into the lungs, and stopping the constriction.

Are you on an antianxiety medication?
Asthma is scary stuff, not being able to breath triggers a fight/flight response which in turn feeds the cycle of constriction and inflammation. If you can keep your nerves calm, on an antianxiety med this can break the cycle of it as well.

Good Luck.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8722 | Registered: Oct 2008 | From: St. Louis
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