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User Topic: Autoimmune Arthritis
tushnurse
♀ Member
Member # 21101
Default  Posted: 12:54 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

Well today was the last test in many to determine what disease I have and the extent of it. I have had painful joints for aprox 10 years. I saw a reuhmatologist about 5 years ago. He basically said you have arthritis. Nothing autoimmune. Suck tt up.

This winter was really bad for me hands swelling joint on my hands changing. I saw a new reuhmatologist and she is awesome. Ran blood work. Did X-rays, more blood work, and an MRI of my lower back. She feels I have a type of arthritis similar to psoriatic arthritis. Based on the results today she is planning to start me on immunosuppressive medications.

I am lookin for thought and experiences both positive and negative to Methotrexate. Has it helped? Were the side effects worse than the treatment or not noticeable ? What other medications have you used to stop the joint damage? What type of exercise can you do without wanting a body transplant after?
This sucks, but certainly is not a terminal illness. I am working hard to get extra weight off(I got happy an fat again). I have lost about 25 pounds this year so far. Anyone have any help with alternative treatments?

Thanks for reading and sharing.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8221 | Registered: Oct 2008 | From: St. Louis
jrc1963
♀ Member
Member # 26531
Default  Posted: 4:05 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

No experience just well wishes that everything works out.

(((Tushnurse)))


Me: BSO - 46
Him: FWSO - 68
DS - 12
D-Day - 12-11-09,
R - he finally came home
Your life is an Occasion. Rise to it. - Mr. Magorium, "Mr. Magorium's Wonder Emporium"

Posts: 24448 | Registered: Dec 2009 | From: Florida
FaithFool
♀ Member
Member # 20150
Default  Posted: 6:30 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

Have you tried acupuncture?


DDay: June 15, 2008
Mistakenly married Mr. Superfreak
20 years of OWs, WTF?
Divorced Dec 26, 2011
"Life is a shipwreck, but we must not forget
to sing in the lifeboats". -- Voltaire

Posts: 17323 | Registered: Jul 2008 | From: Canada
imagoodwitch
♀ Member
Member # 23375
Default  Posted: 6:52 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

I have a friend who has psoriatic arthritis, without Humira, she would be crippled and housebound.


I am just your ordinary average everyday sane psycho supergoddess - Liz Phair

Don't keep dancing with the Devil and wonder why you are still in Hell.

It's all shits and giggles until someone giggles and shits.


Posts: 5332 | Registered: Mar 2009 | From: Munchkinland
kernel
♀ Member
Member # 27035
Default  Posted: 6:58 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

I second the acupuncture.


"On particularly rough days when I'm sure I can't possibly endure, I like to remind myself that my track record for getting through bad days so far is 100% - and that's pretty good."

Posts: 5058 | Registered: Jan 2010 | From: Midwest
tushnurse
♀ Member
Member # 21101
Default  Posted: 7:28 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

I am thinking on tryin acupuncture I just don't know of anyone who has done it. I am a huge proponent of balancing eastern an western medicine. They haven't been doing it for thousands of years for no reason.

I've heard some bad stuff about methotrexate an was wondering what individual experiences are with it. I am hopeful I won't need a biologic.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8221 | Registered: Oct 2008 | From: St. Louis
armynurse
♀ Member
Member # 21818
Default  Posted: 8:14 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

I was treated with oral Methotrexate and then injectable. Unfortunately after about 6 months of injections, my kidney function decreased dramatically and suddenly and I had to go off methotrexate immediatly. I have both lupus and RA. I am young enough that my kidneys are not impaired, and my normal kidney function is excellent. It was very scarey for me. So I cannot take methotrexate at all, ever again.
I will take other biologics from here on out.
Best of luck. I do know they like to start you on Methotrexate because it is VERY cheap. And the other biologics are spendy.

Posts: 215 | Registered: Nov 2008 | From: Ft Lewis WA
ThoughtIKnewYa
♀ Member
Member # 18449
Default  Posted: 8:46 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

I have psoriatic arthritis and have been on Methotrexate. I didn't really notice much change so I went off of it. I also have MS, so any biologics (like Humira) are off the table, for me.

Posts: 11601 | Registered: Mar 2008
FaithFool
♀ Member
Member # 20150
Default  Posted: 8:50 PM, June 20th (Thursday), 2013View ProfileEdit MessagePrivate MessageHomepage

TN, sent you a PM with a link.


DDay: June 15, 2008
Mistakenly married Mr. Superfreak
20 years of OWs, WTF?
Divorced Dec 26, 2011
"Life is a shipwreck, but we must not forget
to sing in the lifeboats". -- Voltaire

Posts: 17323 | Registered: Jul 2008 | From: Canada
purplejacket4
♀ Member
Member # 34262
Default  Posted: 12:02 AM, June 21st (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

I prescribe methotrexate so I have some thoughts.

It is a very old medicine and therefore very cheap, most people tolerate it well with few side effects. You do have to take folic acid supplements with it to protect your bone marrow. It is not as strongly immunosuppressant on your actual immune system as some of the others.

Now humira, imuran,, remicade, etc are stronger but they are also newer and much more expensive. I worry more about these people's immune system when fighting an infection.

Another drug is plaquinil. It was originally an anti malaria drug but found to help autoimmune conditions. It has very few side effects (one though necessitates a trip to the eye doc before starting) and is very cheap. I haven't found it to be as good as he methotrexate and other immune modulators.

Hope that helped.


Me: BS 45
Her: fWS 48 (same sex partner)
Together: 18 years now (both MDs)
OW: meh so what 40s PhD
DD1: 10/30/11EA; DD2: 11/10/11 Had ONS; TT until 12/26/11; broke NC 6/12; NC again 7/12; R-ish

Posts: 2151 | Registered: Dec 2011 | From: Great Southwest
tushnurse
♀ Member
Member # 21101
Default  Posted: 7:37 AM, June 21st (Friday), 2013View ProfileEdit MessagePrivate MessageHomepage

Thanks for everyone's input.
PJ. I know she does use plaquenil on some patients. I am Hoping like heck that whatever I have doesn't progress, I'm only 42 ( almost 43) but don't want to end up crippled.

I guess time will tell.
Thanks again for sharing everyone.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8221 | Registered: Oct 2008 | From: St. Louis
Topic Posts: 11

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