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User Topic: Alzheimers / Dementia online support
ScarlettA1
♀ Member
Member # 43533
Default  Posted: 2:26 PM, July 12th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

This site is and has been such a great (seriously) benefit to both Didact and I.

Today, we learned that his father has been diagnosed with dementia / alzheimers.

Does anyone know a similar type of site for support for families dealing with someone subject to such a terrible ailment?

Thank you in advance!


Be Wise, Be Kind, Be True

WW 47(me)
BH 49
dday 3/19/14
11 mo EA/PA


Posts: 51 | Registered: May 2014 | From: United States
mom of 2
♀ Member
Member # 11214
Default  Posted: 3:32 PM, July 12th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

A fellow SI member (sorry I can't remember who it was ) recommended a site to me when my now late mother was diagnosed with dementia.

agingcare.com

Click on the caregiver forum tab. It was a godsend to me!

So sorry about your FIL. You have a tough road ahead of you.


Me: BW
Divorced after 23 years of M thanks to XH's truth trickle.
Status: Recovering and healing. It's going to be a long hard road.

Update November 2013: It only took seven years but I finally turned a corner. :)


Posts: 13332 | Registered: Jul 2006 | From: The suburbs of hell
travels
♀ Member
Member # 20334
Default  Posted: 3:41 PM, July 12th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

That was me mom of 2.

It is a great site, but not as great as SI.


When one door closes, another door opens. It's the journey through the hallway that sucks.

Posts: 3784 | Registered: Jul 2008 | From: PA
mom of 2
♀ Member
Member # 11214
Default  Posted: 3:55 PM, July 12th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

Yes, travels! Thank you again!

ScarlettA1, the site not only has great resources for care, legal and financial issues, government assistance, etc, but the forums are much like SI. No matter what question or feeling or frustration or grief you and your husband are going through, someone on there has BTDT too. Awesome support!

The only downside I found was the site does not move as quickly as SI so sometimes it may take a day or two to get a response if you post on the forums. However in my experience, no other forum moves as quickly as SI.


Me: BW
Divorced after 23 years of M thanks to XH's truth trickle.
Status: Recovering and healing. It's going to be a long hard road.

Update November 2013: It only took seven years but I finally turned a corner. :)


Posts: 13332 | Registered: Jul 2006 | From: The suburbs of hell
sparklezombie
♀ Member
Member # 40095
Default  Posted: 7:31 PM, July 12th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

I am not active on any online support sites but I'm an elder law attorney and deal with families in this situation all day. I would recommend seeing an elder law atty (not any other kind) because while crisis planning can be done, preplanning always leaves the family with more options. I also recommend that my clients get a very comprehensive durable general power of attorney with extensive trust and gifting powers so we can do long term care planning and asset protection planning, as well as other legal docs. Pm me if you want to chat more about it. It's not an easy road and I'm sorry your family is going through this.


BS: Me
WH: Husband
One daughter - 22 months
Married 11.5 years
2.5 false R's.
Status: Divorcing.
You can't pick up a turd by the clean end. Time to flush the toilet.

Posts: 253 | Registered: Jul 2013 | From: Somewhere on the Eastern Seaboard
ScarlettA1
♀ Member
Member # 43533
Default  Posted: 9:30 PM, July 12th (Saturday), 2014View ProfileEdit MessagePrivate MessageHomepage

Great replies so far! Thank you.


Be Wise, Be Kind, Be True

WW 47(me)
BH 49
dday 3/19/14
11 mo EA/PA


Posts: 51 | Registered: May 2014 | From: United States
tushnurse
♀ Member
Member # 21101
Default  Posted: 3:26 PM, July 13th (Sunday), 2014View ProfileEdit MessagePrivate MessageHomepage

While I am sorry to hear of your dad's diagnosis, there are lots of great resources out there.
That forum is helpful, but there are some very real and serious issues to address and the sooner the better. Please visit the Alzheimers association website there are tons of resources that are locally available. I agree with Sparkle you need to see an Elderlaw attorney and get his advanced directives and durable power of attorney arranged sooner than later. It's also time to get out the video camera and get his memories recorded. These will be of great comfort later.

Read all you can and talk about his wishes and desires and make sure that you all his kids and spouse follow what he wants.

((((And strength)))))


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8789 | Registered: Oct 2008 | From: St. Louis
ScarlettA1
♀ Member
Member # 43533
Default  Posted: 7:30 AM, July 14th (Monday), 2014View ProfileEdit MessagePrivate MessageHomepage

Thank you TN.


Be Wise, Be Kind, Be True

WW 47(me)
BH 49
dday 3/19/14
11 mo EA/PA


Posts: 51 | Registered: May 2014 | From: United States
ISPIFFD
♀ Member
Member # 26367
Default  Posted: 9:22 AM, July 15th (Tuesday), 2014View ProfileEdit MessagePrivate MessageHomepage

During the final year of Dad's journey through Alz hell, I spent a lot of time getting help and support through the forum on alz dot org, website of the Alzheimer's Association. The actual forum is found at 'alzconnected dot org'. Wonderful people with lots and lots of great ideas, answers, and thoughts not only for caregivers of alz sufferers but for the sufferers themselves. Good luck to you, it's quite a journey.


Me: BW (55)
Him: WH (62)
7/14/11 - Divorced

Posts: 1886 | Registered: Nov 2009 | From: another world
Topic Posts: 9

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