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User Topic: Colitis
AFrayedKnot
Member
Member # 36622
Default  Posted: 7:23 AM, July 20th (Saturday)

I went to the doctor yesterday and had a CT scan. They diagnosed me with colitis. I think I have had it on and off for a while.

Does anyone have experience with it? Any dietary suggestions? Any other suggestions?


BS 39
fWS 36 (SurprisinglyOkay)
DD DS
A whole bunch of shit that got a lot worse before it got better.
"Knowing is half the battle"

Posts: 2560 | Registered: Aug 2012
tushnurse
Member
Member # 21101
Default  Posted: 10:08 AM, July 20th (Saturday)

As a very experienced GI RN here I have a few thoughts. First a CT scan alone cannot diagnose colitis. It can show inflammation but not much more that inflammation can be caused by many things. You need a colonoscopy for a definitive diagnosis. You need a good Gastroenterologist.
That being said most inflammation is treated similarly. Steroids gut rest and hydration.
You should eat a very bland low residue diet Google it. It's anything your body doesnt have to work hard to breakdown. Make sure you are getting plenty of fluids as well.
Depending on the type of colitis you really have will determine how it's treated. If you do have a true Ulcerative Colitis you will need to be on immunosuppressive meds and have to have colonoscopies every 2 years. If it is caused from infection then a round of the appropriate antibiotics can fix you forever. If its a blood flow issue then you may have to have a special procedure similar in nature to a cardiac cath to restore flow.
Stress upset and poor rest will aggravate UC and make it rare it's ugly head. Google the Crohns Colitis foundation tons of good info and support there. Pm me if you have more questions.


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8144 | Registered: Oct 2008 | From: St. Louis
jo2love
Moderator
Member # 31528
Default  Posted: 11:43 AM, July 20th (Saturday)

(((Chico)))

When I was diagnosed with crohns, it was bad. The dr had me on meds, ensure drinks, lots of water, and baby food. Slowly I introduced regular foods to pinpoint which set it off (besides stress). Rice, red meat, nuts, seeds,etc..were all off limits. Also, having a good sense of humor about it and deep breathing helps.

Sending you mojo and strength.

[This message edited by SI Staff at 11:43 AM, July 20th (Saturday)]


Posts: 34638 | Registered: Mar 2011
AFrayedKnot
Member
Member # 36622
Default  Posted: 5:18 PM, July 21st (Sunday)

Thanks for the suggestions. I am still kinda in the dark. I only received a call from the on call Dr at my primary care. I have a follow up this week. They have me on 2 different antibiotics and liquid diet for two days then slowly introducing foods.

I guess I will find out more this week.


BS 39
fWS 36 (SurprisinglyOkay)
DD DS
A whole bunch of shit that got a lot worse before it got better.
"Knowing is half the battle"

Posts: 2560 | Registered: Aug 2012
jo2love
Moderator
Member # 31528
Default  Posted: 5:42 PM, July 21st (Sunday)

Try to take it easy, Chicho. Please let us know how the dr appt goes.

Posts: 34638 | Registered: Mar 2011
Jrazz
Guide
Member # 31349
Default  Posted: 5:54 PM, July 21st (Sunday)

(((Chicho)))

I went though all that testing too.. I just have low grade IBS. That in and of itself is a pain, so I'm so sorry you have to go through all this. Sending good thoughts.


If you can't learn to enjoy your life when you have problems, you may never enjoy it because we'll always have problems. - Joyce Meyer

Posts: 16956 | Registered: Feb 2011 | From: California
tushnurse
Member
Member # 21101
Default  Posted: 8:53 AM, July 22nd (Monday)

Chico, make sure you stick to the low residue diet in the meantime. This will save you belly pain, and cramping.

It sounds like they suspect some sort of infectious process since the antibiotics. If that's the case you will start to feel better in a few days. The one antibiotic that they use to treat that can cause some strange side effects, a bad taste in your mouth, or things having a metalic taste. So know that if you are having that it's the medication. Not you...


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8144 | Registered: Oct 2008 | From: St. Louis
NotDefeatedYet
Member
Member # 33642
Default  Posted: 2:09 AM, July 23rd (Tuesday)

I had ischemic colitis. Had to get a colonoscopy and then an angiogram from a vascular cardiologist. The doctors said it wasn't seen often in someone my age. They chalked it up to stress. It was only a few weeks after the affair thing came out, so I guess that was the cause. Get a proper diagnosis. The tests are so fun.


"It's a fool that looks for logic in the chambers of the human heart."

Posts: 769 | Registered: Oct 2011 | From: Texas
AFrayedKnot
Member
Member # 36622
Default  Posted: 3:09 PM, July 25th (Thursday)

Just got out of my follow up. Official diagnosis was diverticulitis.


BS 39
fWS 36 (SurprisinglyOkay)
DD DS
A whole bunch of shit that got a lot worse before it got better.
"Knowing is half the battle"

Posts: 2560 | Registered: Aug 2012
jo2love
Moderator
Member # 31528
Default  Posted: 3:24 PM, July 25th (Thursday)

(((Chicho)))

I'm sorry. Please take it easy on yourself.


Posts: 34638 | Registered: Mar 2011
nowiknow23
Guide
Member # 33226
Default  Posted: 3:43 PM, July 25th (Thursday)

((((chicho))))


You can call me NIK

"Sometimes it takes a good fall to know where you really stand."
-Hayley Williams


Posts: 24936 | Registered: Aug 2011
Jennifer99
Member
Member # 39551
Default  Posted: 3:44 PM, July 25th (Thursday)

:( Sorry Chico. I hope with your diagnosis they can give you some relief.

Posts: 556 | Registered: Jun 2013
AFrayedKnot
Member
Member # 36622
Default  Posted: 6:25 PM, July 25th (Thursday)

Thanks for the hugs. I am actually feeling great except for the damn antibiotics. And they will be done Monday.


BS 39
fWS 36 (SurprisinglyOkay)
DD DS
A whole bunch of shit that got a lot worse before it got better.
"Knowing is half the battle"

Posts: 2560 | Registered: Aug 2012
tushnurse
Member
Member # 21101
Default  Posted: 6:32 PM, July 25th (Thursday)

Well that is a way way way better diagnosis than colitis. Seriously. Once you get well make sure you eat lots of fiber. Fiber is the sponge that keeps things from getting stuck in those pits and pockets (diverticuli). Lots of people will only have one episode. If you have another one though make sure that you see a colorectal surgeon, not just a general surgeon.

Glad you are feeling better!


Me: FBS
Him: FWS
Kids: 15 & 17
Married for 22 years now, was 16 at the time. .
D-Day Sept 26 2008
Fully R'd, and Happy Happy Happy

Posts: 8144 | Registered: Oct 2008 | From: St. Louis
Topic Posts: 14