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little turtle (original poster member #15584) posted at 2:49 PM on Wednesday, March 5th, 2014
Hi all.
My SO's father went to the hospital last week with pneumonia. He was supposed to go earlier last month, but his doctor said he wasn't sick enough. Anyway, he was there for a week and we found out there are some nodes on his lungs. SO told me yesterday that he has large b cell lymphoma, geminal center type, in his lungs. He has a ct scan scheduled for next week, and then he's going to see a cancer specialist. SO said they will probably treat it with radiation.
I did a little bit of googling, but I haven't found any sites that will simplify things for the person without a medical background. Any information would be helpful. What should we expect?
Thanks.
Failure is success if we learn from it.
Deeply Scared ( Administrator #2) posted at 3:56 PM on Wednesday, March 5th, 2014
Little Turtle...
I don't have any experience with that, but did want to offer you and your H my support and good wishes.
"Don't give up, the beginning is always the hardest." My Mom:)
My tolerance for stupid shit is getting less and less.
little turtle (original poster member #15584) posted at 5:39 PM on Wednesday, March 5th, 2014
Failure is success if we learn from it.
purplejacket4 ( member #34262) posted at 9:24 PM on Wednesday, March 5th, 2014
From the American Cancer Society's Website:
Diffuse large B-cell lymphoma This is the most common type of non-Hodgkin lymphoma in the United States, accounting for about 1 out of every 3 cases. The cells are fairly large when seen using a microscope.
Diffuse large B-cell lymphoma (DLBCL) can affect any age group but occurs mostly in older people (the average age is mid-60s). It usually starts as a quickly growing mass in a lymph node deep inside the body, such as in the chest or abdomen, or in a lymph node that you can feel, such as in the neck or armpit. It can also start in other areas such as the intestines, bone, or even the brain or spinal cord.
About 1 in 3 of these lymphomas is confined to one part of the body (localized) when it is found. Lymphomas are easier to treat when they are localized than when they have spread to other parts of the body.
Genetic tests have shown that there are different subtypes of DLBCL, even though they look the same under the microscope. These subtypes seem to have different outlooks (prognoses) and responses to treatment.
DLBCL is a fast growing lymphoma, but it often responds well to treatment. Overall, about 3 out of 4 people will have no signs of disease after the initial treatment, and about half of all people with this lymphoma are cured with therapy.
Me: BS 50
Her: FWS 53 (both family med MDs; together 23 years)
OW: who cares (PhD)
Dday: 10/11: 11/11 TT for months; NC 8/12
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nowiknow23 ( member #33226) posted at 9:31 PM on Wednesday, March 5th, 2014
((((little turtle, SO, and SO's dad)))) I'll be keeping your SO's dad in my thoughts, honey.
You can call me NIK
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
little turtle (original poster member #15584) posted at 10:58 PM on Wednesday, March 5th, 2014
purplejacket, thanks for that piece of information. It sounds like we shouldn't worry yet. Especially if most people show no signs after the initial treatment.
Much of the literature I've read so far is overwhelming with information and large words. Vocabulary is not a strength of mine.
NIK, thanks for the thoughts and hugs.
I'll keep you guys updated.
Failure is success if we learn from it.
little turtle (original poster member #15584) posted at 11:36 PM on Thursday, March 13th, 2014
update - He had another ct scan on Tuesday and he's meeting with the cancer specialist on Monday.
Failure is success if we learn from it.
nowiknow23 ( member #33226) posted at 11:54 PM on Thursday, March 13th, 2014
Continuing to send good thoughts, hon. ((((hugs))))
You can call me NIK
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
Jrazz ( member #31349) posted at 12:09 AM on Friday, March 14th, 2014
(((little turtle, SO & SO's family)))
"Don't give up, the beginning is always the hardest." - Deeply Scared's mom
authenticnow ( member #16024) posted at 12:21 AM on Friday, March 14th, 2014
Sending good thoughts your way, littleturtle.
DS, you are forever in my heart. Thank you for sharing your beautiful spirit with me. I will always try to live by the example you have set. I love you and miss you every day and am sorry you had to go so soon, it just doesn't seem fair.
little turtle (original poster member #15584) posted at 9:29 PM on Sunday, March 16th, 2014
SO's dad has been admitted to the hospital after going to the ER this afternoon. His right arm is swollen and red. They gave him heparin in case he has a blood clot. I haven't heard if this is related to the lymphoma or not. They will do an ultrasound tomorrow. Also tomorrow, the oncologist will (finally) see him. Hopefully, treatment will start soon. He hasn't been eating much. It takes him a long time to do his normal routine as he has to stop and rest often... still has a cough.
Failure is success if we learn from it.
little turtle (original poster member #15584) posted at 6:05 PM on Wednesday, March 19th, 2014
update- SO's dad did/does have a blood clot (I haven't heard if it's gone). A port was put in yesterday. Chemo treatment starts/started today. The oncologist said he is at stage 3 and it's very treatable. He'll be in the hospital at least until Saturday and off work for at least 2 weeks.
I'm glad that treatment has finally started. I hope there are minimal side effects. They didn't say how long treatment will go for.
Positive thoughts and prayers are much appreciated. Thanks
(((SI)))
Edit: Update from SO's mom - Chemo treatment will start next week and will be once a week for 7 weeks. They are still working on the blood clot. He will be home from the hospital tomorrow or Saturday.
[This message edited by little turtle at 12:19 PM, March 20th (Thursday)]
Failure is success if we learn from it.
Vanjo ( member #110) posted at 5:11 PM on Sunday, March 23rd, 2014
Don;t know if you found this site, but it is good and has great links to just about anything about NHL. http://forums.lymphoma.com/
Been awhile, hope posting links is ok.....
..negative people beat cancer also..
SI was where I finally found people who understood.
little turtle (original poster member #15584) posted at 12:56 AM on Monday, March 24th, 2014
Thanks, Vanjo. I appreciate it. Idk why I didn't think to look for a specific forum. 
Thanks, again!
I guess chemo won't start for another week... why do they wait so long to start treatment?? He's got a pet scan this week and bloodwork to check his coumadin levels. He has a compress thing to wear on his arm.
Failure is success if we learn from it.
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