My wife has epilepsy, and it's a very touchy sore spot for her. When she was 4 months old her mother left her on a bed and left the room for a minute. Next thing she knew, my wife was on the floor and not responding. Long story short, she suffered a brain injury and had constant seizures throughout her childhood. Some Dr's predicted that she might not be much more than a vegetable at one point. Well, time passed, medicine improved, and she snapped out of it. She graduated high school, eventually met a devilishly handsome man, got married, and had a son. She had even stopped taking anti seizure meds and went seizure free for over 20 years before they started rearing their ugly head again about 20 years ago. She was put back on anti seizure meds, and they happen in frequency now anywhere from a few months to over a year in between.
Her last one was in October of last year. At that point her dr added a second anti seizure medication to her twice daily routine and she's had it under control for the last 10 or 11 months. We were of course hoping that'd be the end of it. Well, yesterday she had another one while we were out and about. A very mild one where she just blanked out for about 20 or 30 seconds and became unresponsive. It was mild, but it's still scary. When it happens I get a glimpse of what it might be like to lose her, and it's terrifying. I of course am planning to tell her Dr, but she wants to sweep it under the rug and pretend it didn't happen. She doesn't want to be subjected to tests again.
She's angry. She's angry at her mother for leaving her unattended, and she's sad and angry that she has this condition at all. She's angry that she's been driving restricted for the last ten months. She's angry at me because I'm not willing to sweep it under the rug and hide it from her Dr. She cries from time to time about it and says "I shouldn't have to live this way." Well, I feel terrible, and I'm sorry, but you do live this way, and hiding an episode from your Dr is not something I'm going to be on board with. I wouldn't be surprised if the added stress of her A 4½ months ago has played a hand in this most recent episode. We're working hard on R, and have made phenomenal progress, but I'm afraid this could be a setback.
I'm not sure what I'm looking for with this post. To vent? Maybe to have some folks tell me I'm in the right for wanting to tell her Dr about it, I suppose? This is a really sore spot for her, and she has a lot of unresolved anger about it because it's a condition that was thrust upon her due to a careless mistake made by her own mother. She's very close to her mother, and never says anything to her about it, but boy do I hear it sometimes. I think we're going to look into some counseling for her to help her learn to deal with this.
[This message edited by Pogre at 1:07 PM, Saturday, August 30th]