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Alyssamd24 (original poster member #39005) posted at 1:47 AM on Saturday, February 1st, 2014
Six years ago I was diagnosed with narcolepsy. My symptoms came on quickly and I was diagnosed quickly which is sometimes unusual for people with narcolepsy. My neurologist prescribed me two medications for it which I have been on ever since. The meds do what they need to do for the most part, but I still get tired very easily and sometimes need to take naps during the day, even if they are only 15 minutes.
My DD is almost five and is used to me taking naps on weekends and sometimes at night. She also sees me taking my medicine everyday but doesn't know what it is for.
I feel like she is at the age where I can tell her somethings about my narcolepsy, but don't know how to bring it up or what to say. I am looking for advice on how to bring this up!!
Sometimes the worst thing that happens to you.....the thing you think you can't survive....its the thing that makes you better than you used to be.
Sad in AZ ( member #24239) posted at 2:02 AM on Saturday, February 1st, 2014
When she asks, it's time to let her know 
You are important and you matter. Your feelings matter. Your voice matters. Your story matters. Your life matters. Always.
Me: FBS (no longer betrayed nor a spouse)-63
D-day: 2007 (two years before finding SI)
S: 6/2010; D: 3/2011
Ashland13 ( member #38378) posted at 2:17 AM on Sunday, February 2nd, 2014
This is so hard. I have to deal with it in other areas.
Anyway...
I've found with my daughter, who is eleven, I give her a very simple and short answer. I do not dwell long on the negative side of things in order to not scare her and I give the info in simple words, as much as I can get the info she can handle to her but not too much.
"Mommy is okay but sometimes feels sick." Or, "Mommy is not well today. The medicine is to help and the naps are to help, too, so I can be better for you. I just have a headache and have to put my head down for a minute." And so on.
I have arthritis and sometimes similar things happen and I've told my daughter this. She accepted it and even asks, "do you feel ok now?"
I don't know if that helps any and am sorry for your hard time.
Ashland 13
A person is a person, no matter how small. -Dr. Suess
Perserverance and spirit have done wonders in all ages.
-George Washington
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