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Newest Member: Starrystarrynight

Off Topic :
Update: My daughter's surgery

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Charity411 ( member #41033) posted at 1:31 AM on Saturday, October 21st, 2017

If anyone wants to know how to find the GFM page PM me too and I can tell you how to find it as well. You can see this beautiful young lady that Nightowl brought into this world too. We need to help keep her here.

posts: 1736   ·   registered: Oct. 18th, 2013   ·   location: Illinois
id 8004549
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FlowerPower ( member #52231) posted at 3:56 AM on Saturday, October 21st, 2017

Please PM me with GFM. Thanks

posts: 91   ·   registered: Mar. 13th, 2016
id 8004640
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minusone ( member #50175) posted at 4:05 AM on Saturday, October 21st, 2017

You got it FP

"I did then what I knew how to do. Now that I know better, I do better". Maya Angelou

posts: 8372   ·   registered: Nov. 2nd, 2015   ·   location: USA
id 8004643
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TrustNoOne ( member #16591) posted at 9:07 AM on Saturday, October 21st, 2017

GFM information please.

posts: 1373   ·   registered: Oct. 12th, 2007   ·   location: San Diego
id 8004728
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somer222 ( member #21377) posted at 9:49 AM on Saturday, October 21st, 2017

Saying prayers for your daughter and for you.

posts: 1689   ·   registered: Oct. 25th, 2008
id 8004731
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MadOldBat ( member #44146) posted at 11:33 AM on Saturday, October 21st, 2017

Holding you and your daughter tight ((((NightOwl))))

Much love,

MOB xxx

Keeping my chin(s) up whilst getting divorced.

posts: 3990   ·   registered: Jul. 17th, 2014   ·   location: In House Separation.
id 8004744
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josiep ( member #58593) posted at 1:36 PM on Saturday, October 21st, 2017

Trustnoone,

sent via PM

BW, was 67; now 74; M 45 yrs., T 49 yrs.DDay#1, 1982; DDay#2, May, 2017. D July, 2017

posts: 3246   ·   registered: May. 5th, 2017
id 8004768
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Minnesota ( member #50615) posted at 9:23 PM on Saturday, October 21st, 2017

They just posted on the gfm page that she is out of ICU and they got all the tumor and it was low grade- Looking good.

Me: BS Upper 40's
Her: XWW younger 30's
Married Sept. 2010
DDay Thanksgiving 2015
Dday2- Jan28ish, 2016 -new affair
One child (Big Mister) born in 2012
Divorced Sept. 2, 2016

posts: 2120   ·   registered: Dec. 1st, 2015   ·   location: Minnesota
id 8005046
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minusone ( member #50175) posted at 9:34 PM on Saturday, October 21st, 2017

Thanks for the update Minnesota

"I did then what I knew how to do. Now that I know better, I do better". Maya Angelou

posts: 8372   ·   registered: Nov. 2nd, 2015   ·   location: USA
id 8005053
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Charity411 ( member #41033) posted at 9:36 PM on Saturday, October 21st, 2017

Thanks for the update. Thank God it looks like good news.

posts: 1736   ·   registered: Oct. 18th, 2013   ·   location: Illinois
id 8005054
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gonnabegr8 ( member #46415) posted at 9:39 PM on Saturday, October 21st, 2017

Staying updated here too - it's looking good for Nightowl and DD

Keep up the prayers and health vibes!!

[This message edited by gonnabegr8 at 3:40 PM, October 21st (Saturday)]


posts: 625   ·   registered: Jan. 19th, 2015
id 8005057
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SoLongSam ( new member #40712) posted at 11:22 PM on Saturday, October 21st, 2017

Thanks for the update!

I need the GFM link too please.

DD 2013
In R

posts: 42   ·   registered: Sep. 19th, 2013
id 8005087
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minusone ( member #50175) posted at 11:38 PM on Saturday, October 21st, 2017

ok... just sent it

"I did then what I knew how to do. Now that I know better, I do better". Maya Angelou

posts: 8372   ·   registered: Nov. 2nd, 2015   ·   location: USA
id 8005092
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earthangel ( member #44357) posted at 12:27 AM on Sunday, October 22nd, 2017

Oh that is good news! Thanks Minnesota for the update ...We were just talking about Nightowl and her daughter.

Never regret. If it's good, it's wonderful. If it’s bad - it's experience.

posts: 1103   ·   registered: Aug. 4th, 2014   ·   location: England
id 8005113
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imagoodwitch ( member #23375) posted at 2:34 AM on Sunday, October 22nd, 2017

Oh thank God!!!!!!

Thanks for the update, I’ve been praying since she first posted.

Ordinary average everyday sane psycho super goddess

posts: 6906   ·   registered: Mar. 25th, 2009   ·   location: Munchkinland
id 8005169
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 nightowl1975 (original poster member #32212) posted at 2:49 AM on Sunday, October 22nd, 2017

Thank you all so much for the prayers and thoughts. It's been a very long couple of days.

Surgery went well. The preliminary pathology report says low-grade ganglioglioma. She had a follow up MRI that was a nightmare lasting 2+ hours with her crying but remaining completely still while I just wanted to scream at all of them to stop. But I didn't. Because we really don't have a lot of good choices here.

The fantastic news is there is no sign of residual tumor on the follow up MRI. This puts her overall prognosis in the 85-90% ten year survival range. For someone with a brain tumor, this is really about as good as it gets. It certainly is as good as it gets for the location and characteristics of her tumor.

I'm sure I will eventually figure out how to "live" with the fact that my 10 year old daughter has a 10-15% chance of dying before she finishes college. I'm not there yet. But I'll get there because I don't have any other choice. And so many other parents don't get the gift of those odds... their odds are much, much worse. I'm a work in progress in this area.

Anyhow, post-op has been going really well except for pain management. She's doing great from about 15-20 min after pain meds until they start to wear off. The time between doses is *slightly* increasing but not nearly enough to be off of them altogether. They're saying she will go home with Motrin and Tylenol only, and we are just a very long way off from that.

Specific prayers for her pain to be under control and lessen to the point we can use the Tylenol/Motrin combo only would be appreciated. I could also use specific prayers to continue being brave and strong, even when I'm getting very little sleep and just continue to try to wrap my mind around what all of this actually means.

Me: 44
Ex: 52
D Day: 4/2010
Divorced: 7/2010

posts: 782   ·   registered: May. 19th, 2011
id 8005180
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StillStanding1 ( member #40144) posted at 3:17 AM on Sunday, October 22nd, 2017

You have got our prayers, nightowl. You ARE strong, courageous, beautiful, and amazing!!! Hang in there. I wish you peace, hope, and a good night's sleep! Your fears for your DD are understandable, but she is in great hands and her odds really are VERY good. Try to focus on that and use it

to pull you through the difficult times. I'm so sorry for DD's pain. Lots of prayers coming for her. Stay strong. You are her rock and her comfort. God bless you both.

Me: BS50s Him: WH50s
M 25 years - DD DS DS
LTA = 2+ yrs, Dday - 2/13, S for 1 year, now R

posts: 1632   ·   registered: Aug. 1st, 2013   ·   location: Midwest
id 8005195
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RubixCubed ( member #51615) posted at 3:32 AM on Sunday, October 22nd, 2017

Thoughts and prayers for you and your daughter. You are an amazingly strong woman.

"But I'm trying, Ringo. I'm trying real hard to be the shepherd."

posts: 653   ·   registered: Feb. 2nd, 2016
id 8005205
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Violated ( member #21239) posted at 3:33 AM on Sunday, October 22nd, 2017

Oh nightowl, sending you soft, warm hugs, to help you sleep. Bravery and strength will come. In my experience, the Tylenol/Motrin combo works much better than pain meds. Praying for comfort soon, for all of you

Divorced 10/2013

posts: 742   ·   registered: Oct. 14th, 2008   ·   location: West Coast
id 8005208
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minusone ( member #50175) posted at 3:36 AM on Sunday, October 22nd, 2017

(((nightowl & DD))) It's going to be a long journey... and the first step is good news. Remember one day at a time.....

Prayers and all good thoughts are being sent.

I so admire your strength and courage.

Wishing you a good night's sleep and a pain free day tomorrow for your DD.

"I did then what I knew how to do. Now that I know better, I do better". Maya Angelou

posts: 8372   ·   registered: Nov. 2nd, 2015   ·   location: USA
id 8005209
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