Hi everyone..
My apologies for the long post upcoming...yes, I've been MIA and for not good reasons; I've been through another trauma and I just couldn't come back to these boards yet. Decided to peek in this morning, and saw someone post about therapy-induced trauma, and figured it would be a good segue way into what happened to me.
As some of you know, I sort of fell apart/lost all ability to cope with our impending relocation back in mid-August, so I went to a rehab facility. I knew when I went, their protocol is to take you off of all benzos. I've had it done before, but this time was entirely different. I was there for four weeks, and was beyond miserable about 90% of the time. They traded out the short-acting benzo I was on to a different benzo, and every 3-4 (sometimes less) days, they would taper that benzo. So they had me off it in 2.5 weeks. The other facility did not switch the benzo, and they tapered it much more slowly. I can honestly say I did very, very little therapeutic work there; I was mentally incapable of processing things, and physically a wreck. I checked out before I hit the four-week mark because I'd developed diarrhea in week two, and it never stopped. I ended up at the local ER one night horribly dehydrated, very low potassium and some blood test (monocytes?) showed I had some sort of anti-inflammatory process going on. Thing is, I had to practically beg them to take me to the ER. They knew how many, and how long the loose stools had been going on because I had to go to the med window for Immodium every time I had another one. After a week of this, they finally decided to sent out a stool sample for testing. Then it more than a week to get those results back, which said everything was negative.It was so bad, two nights (the two nights after I was in the ER) that I actually soiled myself in my sleep; it was so humiliating. So they got me Depends! I'm shaking just writing about this. I finally started threatening to leave, so they tried to get me an appt. with a GI doc, and it was going to take five more days to get in. In the meantime, the clinical director told me I would be excused from everything except my primary group twice a day, and three meals a day. As I thought about it, it occurred to me, "What the hell am I paying all this money for to only participate at that level?" And to say I was participating was an understatement. So I called my H, who had taken over the relocation, gotten a short-term rental in our new city and told him to come get me. I'd been completely off the benzo for a week, and nothing was getting better. In fact, the previous night I spent over two hours sitting at the nurse's station in a massive panic attack. There was nothing they could give me, or say to me that made it better. At that point, I realized I needed to get out of there, go home and see my own doctors, and not have to go through their 'system'. The only time I saw a physician, was the second and third days I was there. All my other appts. were with a nurse practitioner, or psychiatric nurse practitioner. And the two times I asked to meet with the physician, he had 'emergencies' come up and had to leave early. Don't even get me started on how many times I'd go to the med window for AM or PM meds, and they'd have my meds wrong and I had to correct them! I was also horribly sleep-deprived... more than I'd ever been in my whole life. I had a room with two other roommates, all sharing the same bathroom (I had to buy an air freshener for our bathroom) So I was done.
H came to get me and I knew we had a five-hour drive home, so I asked him to bring me a Xanax. Within a half hour, I felt more normal than I did in almost four weeks. I slept like a rock that night; took another Xanax the next day, and slept great again. The next day I had my first solid stool in over three weeks, and I felt so good that I didn't take any Xanax. And the next morning I woke up panicky and with loose stools again. I'd talked with my internist back home the day after I left and he said I should get back home ASAP to see my physicians that knew me instead of trying to get appts. with people in our new city.
So I began to set up some appts. and four days after I left the rehab, we went home. My internist was FURIOUS that they tapered me so quickly and that they did so without consulting either my psychiatrist OR him for my medical history. He wasn't too worried about the diarrhea; he knew I was going to see my GI doc and psychiatrist. My psychiatrist (who I found out they never called) told me to go back on Xanax.. one .5mg extended release twice a day so I wouldn't have the ups and downs of the short-acting Xanax. I had learned about a phenomena called kindling online (yea, I need to stop googling) - what can happen is, each time you wean yourself off of a benzos, the next time you are on it, and wean/taper again, it's a more difficult event. So, although my psychiatrist is telling me to take the Xanax, I'm already worrying about what it's going to take to eventually get me off it. My GI doc can't really tell me why I'm still occasionally having GI issues, but after looking at my test results, thinks it's probably stress-related, or some form of colitis. I do have the name of a highly-respected GI doc in our new area, so need to get in to see him soon.
H and I drove my car (he'd already driven his out here while I was in rehab) out last week; it took three days, and was exhausting, although beautiful as we drove through the Colorado Rockies and saw the aspen trees so yellow. So I am here in the new apartment, just trying to take it easy, because every time I have to go out somewhere, my anxiety level ramps up. I spend at least 50% of my day in bed, feeling overwhelmed trying to research and put together a new support team here. This week I have two 'meet and greet' appointments with concierge internists, and I have a phone consultation tomorrow with a therapist that my therapist found and spoke with. We have another highly visible contact person at a major teaching hospital, who we were introduce to via H's new boss; I spoke with her last week and she is supposedly also working on finding the right 'team' for me.
As far as H and I go, it feels so stagnant. I can't begin to tell you how much he stepped up to the plate and managed finding a nice short-term rental, packing up a small U-Haul with some of our essentials back home, and towing his car out here almost a month ago with our dog. Then to have me call him and tell him to drop whatever he was doing that day to come pick me up... although, he knew how much I was struggling. To a certain degree, I feel like he's sort of had to become my babysitter, who leaves for work for a few hours during the day. He offers and tries to do so much for me, I think, thinking if he just does this stuff, it will make me feel better... and most of the time it makes no difference. I mean, I appreciate the effort, but I am just so overwhelmed right now, being a visitor in a foreign land that I'm frozen. And although I know he doesn't do it on purpose, I can tell when he goes out of his way to do something for me, and it doesn't change my mood, he takes it personally, then I feel bad because he feels bad. I can't tell you how many greeting cards he sent me when I was in rehab, and always included some pictures I could put on my desk. He has really been thoughtful, but after what I went through, I don't think there's anything he could 'do' right now, to make me better. I really don't worry at all about him acting out; I think he is trying to take on all the guilt of what I'm going through, but in reality, losing my two brothers (although we were relatively estranged), my finding out about my genetic mutation in May, and this uprooting of our lives were probably enough to put me in this state of mind. I see the disappointment in his face when he does something and I don't respond with a better mood.
With everything he's had to oversee in the past four weeks, he hasn't gone to an SAA meeting here. While I was still inpatient, he found one that met early enough in the morning to go to before work, but being new here, he has no one to leave the dog with. In fact, he asked and was permitted to bring our dog into work with him while I was inpatient. They all love him, and have made him 'Head of Security'. But he couldn't take the dog with him to the SAA meeting, so he'd have to go, then come home and get the dog, then go to work. And as for evenings, I really, really need him to be here with me; I am just incredibly fragile. He did take me to a meeting last week of an organization I used to be active in, Depression and Bipolar Support Alliance (DBSA). When I arrived, I didn't know if I could stay because my anxiety was so bad, and in fact I wasn't ruling out having him drive me to the hospital to be admitted to the psych ward. But I took some extra Xanax and made it through the meeting and was glad I went. With him being home on the weekend, we got some more things checked off our check list and looked at some more open houses. So I feel really torn right now... I want him to be going to meetings and working his recovery program, but I need him home every minute he's not working.
Yesterday I stepped on the scale for the first time since going to rehab, and I was down 10 lbs. I can't keep going like this. I'm not eating enough, and am still having loose stools, not necessarily every day, but most. I cannot see how my body and soul can begin to heal when it's not getting enough nutrition. This rehab place just totally fucked up my brain chemistry and it's going to take something drastic to pull me out of this; five years ago that was ECT. I've not had any active suicidal ideation since leaving rehab, but while I was there I sure did. In fact, for the first week I was there, they had a behavioral health tech with me around the clock. I seriously thought I was going to die, being very afraid, yet at the same time, terrified I was going to die because of what they were putting my body through. I did do the Genesight testing while there... if you're not familiar with it, a cheek swab tells them which psychotropic medications your body tends to metabolize easier and with less side effects than others; interestingly, the benzo they switched me to from Xanax when I arrived, falls in the category of being one that side effects can be magnified. I mean, I was walking around like a zombie most of the time, fighting disassociation and catatonia. I couldn't look at people when I talked to them sometimes, and just going in the dining hall was too loud for me... too much stimulation. So armed with that Genesight information, I'm hoping once I find a new psychiatrist out here, we can start tweaking meds to pull me out of this.
There's probably a lot more to tell you about how traumatic the last several weeks have been. Until I get new providers lined up and completely transitioned, my therapist, psychiatrist and marriage counselor are willing to do phone sessions with us. But with the two-hour time difference, that's going to be a challenge.