You have all written a lot while I was offline - let me try to respond comprehensively. Sorry for the novel.
I would like to call out that SisterMilkshake and lauren123 are coming the closest to understanding this complicated conudrum. I would like to give a summary of my health history so you all can get a handle on the big picture I've got going on. I am NOT looking for sympathy. Just appreciate is the complexity, please.
1. Endometriosis with scarring and adhesions diagnosed (dxed) at age 18
2. Hormones permanently thrown off because of how my endometriosis was treated with BC pills for 20 years - my body cannot maintain a normal level of testosterone, so I must supplement. Finally dxed at age 40. I see an internationally lauded specialist for this.
3. Poor immunity from childhood resulting in a propensity for all sorts of colds/flus and vaginal infections. This was probably a precursor to my final presentation with CLL.
4. Chronic lymphocytic leukemia (CLL), most likely cooking since 2006 as white counts have been rising slowly since then. Presently, symptoms are fatigue and a greater propensity for infections. Add in anxiety as this is currently an incurable cancer requiring very careful planning before treatment is started. Long term treatment tends to cause infections or secondary cancers which kill the patient. I am currently in the planning stage and may be for several years. Dxed at 40. I see the world's top specialist for CLL.
5. Perimenopause - wacky periods, PMS for weeks, all that stuff. This shit just started this year.
6. Pain from an accident 7 years ago where I broke my left hip, requiring pins/plate and leaving me stiff/painful in that hip and with a large sensitive scar.
I have chewed through dozens of drs in my lifetime and believe my health care team at this point to be absolute top notch.
What was your sex life like while you were dating?
It was better. 12 years ago, I was much more capable and willing to put up with pain. At that point I just had endometriosis, the start of the messed up hormones, propensity for infections and occasional fatigue. I was excited to be with my new boyfriend - the "new relationship" fire was hot. I could manage about 3-4 times a week. Keeping up that pace became a marathon that would never end. About two years in, I began to get sicker and my ability to have sex declined. We talked about it all the time. Sometimes calmly, sometimes upset. He encouraged me to keep seeking doctors who wouldn't just throw a script at me and get frustrated when I didn't get better. He knew I couldn't keep up long before we were married. We started seeing ICs and MCs in 2003 to address the tension the sexual mismatch was generating. We felt we could find a way to overcome the mismatch.
We married in 2006. I broke my hip 5 months later. After the accident, my general state of health began to decline faster. More pain, more infections, more anxiety and exhaustion from the constant discomfort and upset over being 35 and having to struggle so much. It was around then when I put my foot down about not forcing myself to have sex any longer.
Next quote:
Then there is the fact that they do have intercourse 2-4 times a month. Will you two still have intercourse or any sexual relationship? How often is he going to be seeing this "other" person? Once a month? Once a week? Everyday? Sounds like your husband would want it everyday. Not likely if he has to fly to see her. Expensive if you are paying pro's.
Our agreement is we will have sex as I feel up to it. Previously, in MC, we'd tried to agree upon a consistent commitment of 2X a week. I tried hard to meet that commitment but could not. I found I was making choices focused on preserving my ability to have sex, rather than actually live my life. That was no good.
We did discuss frequency but he could not articulate what he wanted in the context of seeing another person.
It sounds like you have been to many therapists. I believe you even saw a sex therapist. I find it hard to believe that they would think there isn't a "problem" when someone masturbates to the point of pain. Have you checked these people's credentials?
Yes. Extensively. I fact-check as a hobby, LOL. I just counted them all up - we have seen a total of 10 (3 MCs, including the sex specialist, 3 ICs for him, 4 for me, and not counting the one I saw prior to this relationship). I find it hard to believe the same issue can be worked on with 10 professionals and they all come to the wrong conclusion.
Several of my ICs have posited he has narcissist tendencies. I do agree very much with that. So does our MC. The man loves attention more than anyone I know. Discussing it with him is quite another story. Most narcissists can't be convinced they ARE narcissists. I do believe we have more work to do here, for sure.
Was he sexually abused as a child?
No but he has experienced abandonment by his father, who bugged out when H was 4. Dad was present in his life thereafter but he was an awkward, disengaged dad and H had a lot of anxiety and anger when visiting. From what I can tell, H's mom was overwhelmed with caring for her 2 small sons, one of which (my H) who was very stubborn and willful, and the other who was very meek and anxious. Mom wasn't great with boundaries/accountability.
Poor boundaries?
I am only his second long term relationship and I quite firmly believe I am the first woman in his life who has tried to enforce accountability and boundaries on him. Some of the tantrums thrown over setting and maintaining reasonable boundaries (like not talking loud on the phone when I'm trying to sleep) have been... shall we say... EPIC. Complete with panic attacks and screaming fits. Needless to say, I refused to engage in "helping" him through the panic attacks/fits and that stuff stopped quickly. He hasn't done that in a couple years now.
So... to wrap this up:
1. He's got a physical need I can't and won't ever be able to meet, but there really are still unresolved emotional issues at hand. Respecting boundaries/rules/agreements sounds like the cornerstone.
2. I am going to talk to him but first I need to figure out how to broach it. Good news is I have an appt with the MC this Thursday and will get her feedback.
Lauren123 thank you for your suggestion about a possible way to talk to him. I thank all the rest of you for the time you've spent with me on this.
Aesir, thank you for the summary of possible options.
If anyone makes it all the way through this post I applaud you for your fortitude!
[This message edited by MaryContrary at 2:59 PM, September 22nd (Sunday)]