I have mild claustrophobia. Or at least, that's what I USED to think I had, until I had to get an MRI.
Nope. It's severe. Very severe.
It doesn't help that I am too big (fat) for a regular MRI, so even the bigger MRIs and the open ones are kind of small for me.
Also, as I found out, how you react partly depends on if you really have claustrophobia or not. What do I mean by that? Well, I actually have something that is grouped in with claustrophobia - cleithrophobia. It isn't the confined space in and of itself that bothers me. It's the fact that I know I can't just get up and move whenever I want. I can (and have) been closed up in a coffin before (in high school - haunted house!) I had no problem with that because I could lift the lid whenever I wanted, and the person with me in the room was someone I trusted who would never have held down the lid or allowed anyone else to do so. If someone had held down the lid, I would have lost it and been unable to go back in (probably even with the lid off!)
So this means that even with the open MRI, I have a real problem. No matter what, I KNOW, I can't just sit up and move. It's not possible - at least not until someone else removes me from the machine. I know I'm not in control of whether I can move or not, and that's what causes the panic.
I recently had to get a CAT scan of my heart, and it was touch and go. I did get through it, but just barely. I had everyone telling me that I'd be fine, because the CAT scan has more room than an MRI, and it's narrower, so it covers a much smaller part of your body. Most times, your head ends up outside the machine on the other side.
It was just as bad as the MRI for me. In some ways, worse. The test required that halfway through they give me meds through an IV. They warned me ahead of time that I might feel like I was having trouble breathing with the meds (even though they don't really affect your breathing). I did, I panicked, and I wanted out. The tech with me while I was doing the test talked me through it, and was the only reason I made it through.
So... everyone has given the right suggestions. And an open MRI is definitely better than a regular one. But I would suggest looking at one first, so you know what you will be dealing with. I kept getting assurances that I would have no problem with an open MRI or with the CAT scan, and went unprepared. They were wrong - any of them are MAJOR problems for me.
So:
- As far as what to wear, check with the facility. I know for all of mine, I wore my street clothes. I just made sure that nothing I wore had any metal of any kind. I wore some lounge pants (that are similar to sweats, with no ties, eyelets, or anything like that at the waist), a t-shirt, and a sports bra (the tank top style that goes on over the head, so there are no fasteners on it). If you are in your own comfy clothes, that will help remove some feelings of anxiety. So see if they will allow you to do that.
- Anti-anxiety meds, definitely. My doc gave me Xanax. It helped some - mainly because I don't think I would have even gone in the machine without it. But try them ahead of time if you can, so you know how they affect you. For me, they only had a minimal effect, so I still had some problems.
- I didn't use headphones or earplugs. I couldn't have cared less about the noise, and I needed to be able to hear people talk to me. So this one depends more on what helps you.
- The cloth across the eyes is a must. Even better is an eye mask, such as the kind some people wear at night to keep light out. As I unfortunately found, sometimes the cloth can slip a little. And I had trouble making myself keep my eyes shut when it did. Also, I found that I needed to put the mask on as soon as I got on the table, and not wait until just before they put me in. It might sound a little weird, but having it on as long as possible made it easier for me to "forget" where I was. The longer I had it on, the less I could tell if they had moved me in the machine or not, which made it easier to convince myself I wasn't in it.
- Stress to the tech how bad it is for you. When I got the CAT scan done, the only reason I got through all of it was the tech that was with me. Halfway through, when they gave me the meds and I felt like I was having trouble breathing, I told her I needed out. She was very calming, touched my leg, and did probably the only thing that would have helped - reasoned with me by saying, "Come on, you can do this. You've come this far, and if we take you out, you'll have to start over from the beginning. You don't want to waste all you've already done, right?" Just the thought that I would have to start over again & be in that much longer was enough to help me. And I don't think for me that having my husband in would have helped. His way of handling these things is that he jokes with me - which works well most of the time, but not when I'm starting to panic.
-Finally, do your best as you are going in to make sure you don't touch the machine at all. I was supposed to get an MRI on my back at one point. That didn't happen, and likely won't unless they put me completely under. Even with the open MRI, when they went to do the one on my back, they put something over my midsection - some sort of foam padding. With that, I just barely fit in the MRI, so I could feel the top of it pushing down on me. With that, there was no way I could stay in. I think I stayed in maybe 10 seconds - it seemed like a lot longer, but it may have actually been less! I hit the button for them to take me out basically as soon as they got me in.
I hope some of that helps. Good luck!