Speaking of tangents... would love to get some opinions. I had endometrial cancer four years ago... caught very early, so no radiation or chemo. However, I have a ton of cancer history (breast, melanoma, ovarian) in first degree and second degree relatives. I have dense breast tissue and have had several biopsies that have come back negative.
A few weeks ago I was due for my annual appointment with my breast surgeon who follows me due to my high risk category. Long story short, I find out he has closed his office because one patient (he's been in practice for over 30 years and this is the first time it's happened) complained that he engaged in inappropriate sexual contact with her. I found articles in our local newspapers - he was never convicted... judge dismissed because there was no evidence, but the state pulled his license. Evidently he is doing everything he can to appeal and get his license back. So the reality that this is a possible sexual boundary violation (she even admitted she consented to a few kisses in the beginning) and it sets off warning bells everywhere for me. In the meantime, I find a new doctor and see her this week, so I've got someone looking at my case with a new set of eyes. She is strongly encouraging me to meet with a genetic counselor (previous doc had suggested it, but never pushed it on me); I did agree to add another diagnostic tool annually that insurance will cover - whole breast ultrasound.
So today I decide it's time to at least meet with the genetic counselor. I know full well what path this could take me down. I have two adult daughters that, if I had genetic counseling, could benefit from the results. I am finally pulling out of the fog of the last ten months enough to decide to schedule the ultrasound appointment, AND an appointment with the genetic counselor. I was telling H about it tonight, and it occurred to me the last major scare I had was exactly two years ago, when he was in the middle of affair #3. The radiologist scored my diagnostic mammogram in a way that suggested I had a 78% chance of having breast cancer, so I had the biopsy; remarkably it came back negative, and the past two years I've been clean. So as I recalled going through this two years ago, I began to feel and express all my anger at the reality that, while I was going through this (and he was there for me and admits he was terrified at the time, but couldn't admit it to me), he was having fun with #3. And of course, out came the usual questions of, "How could you carry on with someone while I was going through this?" "I'll bet you were hoping it was cancer so you could finally be free of me without any guilt." "What would you have done had it been cancer?" etc., etc., etc.
And tonight he breaks down and tells me that even having this talk about genetic counseling has him terrified...that even seeing the literature on the kitchen counter scares him, much less our talking about it. He says he will support me in whatever I choose to do, but the thought of me even having to consider genetic counseling upsets him terribly - he hesitates a few seconds, then says, crying, "I can't even think about a possible increased risk of you getting cancer again and losing you, because I've just found you again."
Now, H is in the medical field, so in some situations it is helpful to have him come along with me for appointments, especially ones that are fraught with possible bad news, or difficult decisions need to be made. He is familiar enough with medical jargon to know what kinds of questions to ask, that wouldn't even come to my mind. So tonight I asked him if he wanted to come with me to my genetic counseling appointment, and he said yes. So that's in a couple of weeks. But it's clear he doesn't even want to think about the possibility of me finding out I could have an increased risk over my lifetime.
In the meantime, I'm still struggling, knowing I will have to make a decision on whether to have the genetic test at some point (it could be next month, next year, five years from now, or never). I am leaning toward having it done, again, if only for the information it will provide my daughters. However, I still feel like I'm so incredibly fragile from the trauma of the last ten months, that I'm questioning my resilience at this point to get through another crisis if I do have the testing and I come back positive with something (they can now test for more than just the BRCA gene). I honestly feel like in the past two weeks, I have started to come out of the fog (which is probably why I've even scheduled the appointment); do I really want to risk the possibility of walking into another crisis?
I am of the strong belief that major stressors/trauma are risk factors for many diseases, including cancer; in fact, it was nine months after I came out of my major depressive episode four years ago that I was diagnosed with endometrial cancer. So I do worry (I think I've mentioned I have some health anxieties) that this latest crisis with H has perhaps been an incubation for another kind of cancer that I might be at risk for due to my genetics. I don't think I'd go all Angelina Jolie if I found out I had a positive genetic result, but I would definitely increase my screenings more than they are now (twice a year).
I think an argument could be made either way, going ahead with the genetic test, or not going through it, could be a sign of self-care. And I'm really torn.