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tushnurse ( member #21101) posted at 6:48 PM on Thursday, October 22nd, 2020

She is a floor nurse, and that is all she knows about. She is correct, and indwelling rectal tube, one that stays in is for C-dif. That's a totally different animal than what I am talking about and describing.

I would ask the GI Dr if they can snatch one from the endo dept prior to DC to home, if not, I bet we can order one on Amazon, you can get everything on Amazon.

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8600934
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 WhatsRight (original poster member #35417) posted at 7:11 PM on Thursday, October 22nd, 2020

WE ARE LEAVING!!!

Nothing they do makes him go, so I guess they are giving up.

I will call our virtual gastro doc tomorrow. And I will get the tube from him.

And if not, you are right tush, you can get anything on Amazon. I think we got one of our boys from Amazon!

Tush,I can never thank you enough for all your help through this.

And all of the support from ALL OF YOU!!!!

I’m going to hope I can just let this thread go and give any significant updates on the “Health Check” thread from here on out.

Y’all are SIMPLY THE BEST! BETTER THAN ALL THE REST! ❤️🥰❤️

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8600946
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tushnurse ( member #21101) posted at 7:42 PM on Thursday, October 22nd, 2020

Just checked and you can get what I am talking about for $6.92. Just look up Dover Rectal tube.

So glad you are going home.

Now to get him back into his normal routine again.

((((WR))))

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8600958
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 WhatsRight (original poster member #35417) posted at 8:27 PM on Thursday, October 22nd, 2020

👍🏼🙏👍🏼🙏👍🏼🙏👍ㇿ 6;🙏👍🏼

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8600973
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hcsv ( member #51813) posted at 10:48 PM on Thursday, October 22nd, 2020

I have been following. So glad you are heading home. Maybe that will be just what he needs right now. And can I just say, I think you are amazing.

After 40 years, ex turned into someone I didnt know and couldnt trust anymore. Divorced. 1/17

posts: 774   ·   registered: Feb. 14th, 2016
id 8601033
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DragnHeart ( member #32122) posted at 5:50 PM on Friday, October 23rd, 2020

Habe you both made it home? How are things going?

Me: BS 46 WH: 37 (BrokenHeart911)Four little dragons. Met 2006. Married 2008. Dday of LTPA with co worker October 19th 2010. Knew about EA with ow1 before that. Now up to PA #5. Serial fucking Cheater.

posts: 25896   ·   registered: May. 10th, 2011   ·   location: Canada
id 8601359
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Lionne ( member #25560) posted at 8:19 PM on Sunday, October 25th, 2020

I'm hoping we aren't hearing feom you due to the upheaval of getting back home.

Thinking of you.

Me-BS-71 in May HIM-SAFWH-74 I just wanted a normal life.Normal trauma would have been appreciated.

posts: 8533   ·   registered: Sep. 18th, 2009   ·   location: In my head
id 8601925
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crazyblindsided ( member #35215) posted at 10:19 PM on Sunday, October 25th, 2020

Have you tried THC edibles? I know it's marijuana but it does help with pain without the addictive factor and harshness on the liver.

fBS/fWS(me):52 Mad-hattered after DD (2008)
XWS:55 Serial Cheater, Diagnosed NPD
DD(22) DS(19)
XWS cheated the entire M spanning 19 years
Discovered D-Days 2006,2008,2012, False R 2014
Separated 9/2019; Divorced 8/2024

posts: 9075   ·   registered: Apr. 2nd, 2012   ·   location: California
id 8601953
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Jeaniegirl ( member #6370) posted at 8:44 AM on Monday, October 26th, 2020

Whatsright, checking on you and your H. Hope things are better.

"Because I deserve better"

posts: 3731   ·   registered: Feb. 1st, 2005
id 8602058
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tushnurse ( member #21101) posted at 2:18 PM on Monday, October 26th, 2020

WR - Hoping you are doing better.

Wondering how things are going since arriving at home.

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8602122
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 WhatsRight (original poster member #35417) posted at 2:11 AM on Tuesday, October 27th, 2020

Aww... how sweet of you are to ask about us.

We finally left the hospital… I can’t even remember what day it was at this point. Things have been a bit crazy.

His blood pressure bounces up from time to time and he is doing some heavy cold sweats. Usually he does that when he’s in pain, but never to this extent. So I’m a bit concerned about that.

But knock on wood, so far we have been able to manage the bowel issues with success.

Tomorrow morning we go bright and early for him to get his second nerve block to try to help with the abdominal pain. He hasn’t shown any interest in getting up since we’ve been home… Two or three days now… But, his new state of the art wheelchair arrives on Thursday and I think that may put a little bit of enthusiasm in him… At least I hope so.

Yes, to answer your question… I have given him THC edibles. And it truly helped him when he was on opioids… Percocet. When I would cut back on the amount of Percocet he was taking in order to get him off of it, a friend gave me some brownies and some gummy‘s with THC, and I gave them to him. It seemed to be the perfect thing to hold him over till the next pill.

Sadly, my state will NEVER legalize marijuana, even for medicinal purposes. But if it happens nationally, maybe then we can get it.

I’m hoping this nerve block in the morning will help some, and then once the chair gets here he will be up and around more.

Been a bit of all day today. I woke up in the middle of the night with a bad sore throat and a cough, and sneezing. And a runny nose. Everything but sneezing is on the list for Covid symptoms, but I don’t believe I have it. My grandbaby has been at my house for a few days and she has a cold and I’m sure I’m catching that from her. But, yes… I am wearing my mask even inside my own home.

Anyway, I get up at four this morning to take my sister about an hour down the road to have some same-day surgery, and drive back home instead of wait there for hours. I pick her up at 11 and bring her to my house because she has had anesthesia and doesn’t need to be alone. Then I drive about 45 minutes away to pick up my son to stay here this weekend.

He is having issues with his baby’s mother, and they are taking weeks away from each other and just spending the weekends together for a few weekends. I think he’s acting disrespectful and mouthing off to her, but I don’t know. But he and I had the most vile conversation on the way home. And it was all because my other grand child’s mother who stays at our home three or four days of the week each week, so my other son can be with his daughter, and the son I picked up wants me to tell her that when he’s here he would like her to leave so that he can sleep on the couch.

Yeah… Not gonna happen. And he got so angry and so disrespectful because of it.

Literally, every bed every couch every chair that’s a recliner in my home has a body in it at this point! If I just charged, I could make a living off of this! Ha ha.

Actually, I love having all of them here if everybody gets along!

So sorry to have neglected these posts… I have missed being on the site. When I was at the hospital I could spend so much time “talking“ and “listening“ to everyone. But the last few days have been a bit crazy!

Love you all!

❤️❤️❤️

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8602385
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Adlham ( member #53358) posted at 2:42 AM on Tuesday, October 27th, 2020

TushNurse & WhatsRight- I specifically remember being taught about soap suds enemas for relieving copious ampujys of gas.

We had a patient when I was in nursing school and my clinical instructor was so excited because he thought it great fun to watch as the gas fluttered the water.

Yeah, nurses are not quite right in the head lol

WhatsRight- I'm just sending you lots of love and prayers.

There is NO need to have that “one last conversation” with a toxic individual in your life.” The closure will come when you look deeper inside yourself. It’s not your job to fix someone when they are unwilling to fix themselves.

posts: 1821   ·   registered: May. 24th, 2016   ·   location: Pacific Northwest!
id 8602396
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 WhatsRight (original poster member #35417) posted at 2:51 AM on Tuesday, October 27th, 2020

Well, thanks!

Good to know.

Right now I’m just trying to “train” his body to “go” at the same time each day.

But there is no way to know when I might need some soap suds!!! 😊

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8602401
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 WhatsRight (original poster member #35417) posted at 4:40 PM on Tuesday, October 27th, 2020

So, people, I’m starting to lose hope.

A month ago the sympathetic nerve block gave my H temporary relief of 80% for a short time (overnight).

Today - NOTHING .

He’s getting to where he isn’t even complaining. He stares straight ahead and rarely speaks.

So we have an appointment in a couple of weeks to see what is next.

So... I am a person who does not give up. I’m a person that… If I dropped a glass Christmas ornament, I would head for the superglue.

But there is so much shit going on.

I’m afraid my son just out of rehab is drinking again. I know he relapsed 2 times, but not sure about more.

My son who is here in the week because his girlfriend said they needed to try weekends for a while due to his “disrespect”...he is HIGHLY disrespecting me and my granddaughter’s mother (to me - not to her). I’m locking up all the doors again and putting away anything of value, because when he gets like this, he takes things. I’m very concerned he has a gambling issue and owes a lot of people a lot of money.

And I’m feeling like my hope that my oldest son will be able to get back together with his daughter’s mother. Is in vain. I watch them together and it is very sad. Whereas she used to be the one to put in all the effort and he was hateful and short tempered… Now he is trying everything to be supportive and helpful and work together… And she is very short with him and critical of him relentlessly.

I fear that I am losing sight of “JOY”. I think I’m going to refocus on trying to be happy whenever I can. It’s not joy… But happiness is good, right?

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8602561
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little turtle ( member #15584) posted at 7:43 PM on Tuesday, October 27th, 2020

(((WhatsRight)))

I'm with you. losing hope and joy in my own life. I'm grasping for strings. Reaching out to friends hoping for comfort, but still feeling lonely. It's going to be a long, dark season ahead. You're not alone.

Was it a possibility that the nerve block wouldn't work? Could there be something else going on? I wish I had answers for you.

Failure is success if we learn from it.

posts: 5648   ·   registered: Aug. 1st, 2007   ·   location: michigan
id 8602659
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 WhatsRight (original poster member #35417) posted at 11:01 PM on Tuesday, October 27th, 2020

little turtle...

I’m so sorry that you are feeling down as well. I’m sure the Covid situation doesn’t make it any better, but in reality, I can’t complain about Covid. Of course it makes me worry about my family and everyone that I know and all of you all, but I am old and I take care of my husband so I don’t really go anywhere anyway. It’s not a huge imposition on me to just wear a mask and stay at home most of the time.

But with all these things going on with my kids… And it’s nothing I have any control over… I feel helpless to just sit and watch the train wrecks that are their lives.

Earlier this afternoon I had a conversation with my oldest son. He told me he believes that the one that is being so horrible to me now is selling drugs again. And I have noticed that cars are coming up to our house and my son gets in the car with him and comes back in 10 minutes with a power aid. Said he called a friend to ask them to take him to the store to get a drink. Thing is, we live less than half a mile from a big supermarket.

Now he won’t leave. This is happened before in our history together. And the thing is, once I called the police and told them that I needed them to help escort him out of the house because of the way he was acting. The police proceeded to ask me if he lived at my house, and for how long, and were his things at my house, etc. And when I told them that he had, but he wouldn’t obey the rules and he was disruptive, they said, “you will have to file an eviction notice and he will have one month to get out, And if he doesn’t, then you’ll have to go to court and pay court fees and then he’ll have either 30 to 60 more days to get out.”

My other two sons have left for the afternoon, my husband is in his room with a stick blocking the sliding glass doors so that they cannot be opened, and the deadbolt locked… With the key in my bra.

It’s just no way to live, you know?

I’m so very sad about this son, because he is the one with the seven-month-old. He’s the one that has told me that he’s turning his whole life around for his son. I don’t know what is happening. Maybe the fact that he couldn’t get along with his girlfriend or he was disrespectful to her. I just don’t know.

I’m so sorry that you are “feeling it“ too.

We will just be here for each other, right? This is sort of what I had in mind when I started this thread. We need to look after each other, and this place does a really good job of it.

Thoughts and prayers are with you, girl! ❤️

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8602726
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little turtle ( member #15584) posted at 2:28 PM on Wednesday, October 28th, 2020

I found the song I liked from church last weekend and was listening to it yesterday. It's called One Thing Remains.

"Your love never fails,

It never gives up

It never runs out on me"

This line from the song gives me peace, at least while it's playing.

I wonder if you meant to post on the other thread you made?

That isn't a good way to live. And you said your boys weren't going to live with you in the new place... but neither you or I are surprised. I know you're doing the best you can. (((WR)))

Failure is success if we learn from it.

posts: 5648   ·   registered: Aug. 1st, 2007   ·   location: michigan
id 8602862
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 WhatsRight (original poster member #35417) posted at 2:00 AM on Friday, October 30th, 2020

Well, I thot I would report that my H got his new wheelchair today. He slept all day till time for the guy to come. Acted as though he couldn’t care less.

He is sitting in it now, but it didn’t bring him the joy I thought it might. This chair is manual, but has a small”smart drive” motor (removable) underneath so he can start it up with like a smart watch and it pushes the chair.

I’m very concerned about him. He sits around with his hands in front of his belly - shaking like a 95 year old man. He moaning a lot, and sometimes stares into space.

I’m so afraid he has become decrepit at age 62.

😢

As far as my son...he is still here. He just sits around on his phone, or watches tv. Any communication between us is always via text, and always unpleasant.

He told me via text last night he was going to get his baby and bring him here for the day. I said it would be fine. He said I would need to drive him to get the baby...55 minutes. I said no. That I would not be in a car with him for quite some time.

Because he is supposed to be spending weekends with girlfriend / baby, I hope he will be leaving tomorrow. After he leaves, I will text him, reminding him he can’t stay here any more. Actually, their “break” was supposed to be for a month...and the month is over this weekend.

It’s been just horrible with him here. So disrespectful and angry. And I have to be sure to lock my bedroom every time I go in or out because he has been known to take things.

I am angry with him, but more sad than angry. If he doesn’t change, I fear he will lose his family or be back in jail, or something.

This is no way to live. 😢

[This message edited by WhatsRight at 7:25 AM, October 30th (Friday)]

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8603513
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HFSSC ( member #33338) posted at 4:16 PM on Saturday, October 31st, 2020

Whatsright, I’ve been following your thread and haven’t responded yet because tn is the authority here. But I have a patient who has had horrible abdominal pain that nobody could figure out. Her doctor, who is our medical director, evaluated her for something I’d never heard of— mesenteric insufficiency. They did vascular flow studies to the mesenteric artery and confirmed the diagnosis. I just did a search on mesenteric insufficiency and spinal cord injury and it appears there is some correlation.

The chronic form is atherosclerosis of the mesenteric artery that supplies the abdominal organs, including the gut. It cuts off the oxygen supply (ischemia) which causes the pain.

It might be worth asking the primary doc to consider this dx since all the things you’ve tried aren’t helping.

❤️❤️❤️❤️

Me, 56
Him, 48 (JMSSC)
Married 26 years. Reconciled.

posts: 4971   ·   registered: Sep. 12th, 2011   ·   location: South Carolina
id 8604121
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 WhatsRight (original poster member #35417) posted at 11:18 PM on Saturday, October 31st, 2020

HFSSC...

Oh my gosh... thank you so much. I have just been wondering what it could be and who to go to to find out. All possibilities present a possible solution.

If my husbands issues are what you are talking about, is there something that can be done for it?

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8604221
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