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nowiknow23 (original poster member #33226) posted at 8:13 PM on Monday, June 9th, 2014
We kept her legs tightly wrapped (starting at the ankles and going as high as we could up her thigh) in an attempt to keep the swelling down.
They do this with Dad as well. Compression hose alone are not sufficient. The wrapping they do for him is almost cast-like.
You can call me NIK
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
Faithful w/Love ( member #33128) posted at 8:25 PM on Monday, June 9th, 2014
((((((NIK))))))
Sending you prayers.
BS(ME)41 WH(HIM)38
DD 21 and DS 16
Separated Aug 2012
Moved back home Oct 31 2013
Separated again June 2014. Heading toward divorce.
False R. Still Lying.
"You never know how strong you are until being strong is all you have left"
GabyBaby ( member #26928) posted at 8:27 PM on Monday, June 9th, 2014
Me - late 40s
DD(27), DS(24, PDD-NOS)
WH#2 (SorryinSac)- Killed himself (May 2015) in our home 6 days after being served divorce docs.
XWH #1 - legally married 18yrs. 12+ OW (that I know of).
I edit often for clarity/typos.
ThoughtIKnewYa ( member #18449) posted at 8:36 PM on Monday, June 9th, 2014
They do this with Dad as well. Compression hose alone are not sufficient. The wrapping they do for him is almost cast-like.
Yes, same thing. It's somewhat effective. My aunt was also really active and hard to keep still, so they ended up putting her in traction for several hours each day. She was always getting up and doing stuff, then claiming someone else did it (like cooking breakfast, but she used a stool to get around and there was always the stool left behind where she claimed someone else was working).
I know how helpless it feels when you have a loved one in that condition, so I know the only comfort I can offer you is through prayers and (((nik))).
tushnurse ( member #21101) posted at 9:18 PM on Monday, June 9th, 2014
NIK honey, please ask for palliative care. It's not withdrawl of treatment, but does provide the help and support you your dad, and your family need, mentally and physically.
He sounds like many of the folks I help, and care for. Very delicate. I hope they can get things regulated and he clears a bit, not uncommon at all for confusion to go hand in hand with the infection.
((((and strength))))
Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.
jo2love ( member #31528) posted at 9:23 PM on Monday, June 9th, 2014
Kajem ( member #36134) posted at 9:52 PM on Monday, June 9th, 2014
Saying prayers for you and your family ((((((NIK))))))
K
I trust you is a better compliment than I love you, because you may not trust the person you love, but you can always love the person you trust. - UnknownRelationships are like sharing a book, it doesn't work if you're not on the same page.
nowiknow23 (original poster member #33226) posted at 10:06 PM on Monday, June 9th, 2014
Thanks, tushnurse. We are already receiving hospice care, and he has very clear advanced directives in place. We know it's just a matter of time. He doesn't want to pursue treatment for the cancer (chemo, etc.) and is continuing the transfusions knowing full well that some time very soon his systems will shut down. He doesn't want to stop the transfusions (it is akin to suicide in his mind, and he is Catholic), but he's been at peace with his time coming to an end.
The rest of us? I can't say we're at peace with it yet, but we are determined to follow his directives to the letter. We were still receiving some support services from hospice after my mom's death in November, so we kind of just looped back around to the beginning of that cycle again, only this time with Dad. We all know what's coming. 
You can call me NIK
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
InnerLight ( member #19946) posted at 10:19 PM on Monday, June 9th, 2014
(((((Now and Dad and Family)))))
BS, 64 yearsD-day 6-2-08D after 20 years together
The journey from Armageddon to Amazing Life happens one step at a time. Don't ever give up!
tushnurse ( member #21101) posted at 1:53 AM on Tuesday, June 10th, 2014
Oh NIK honey. Embrace hospice. You did the same with mom right?
So glad you are getting the support you need.
Keeping you and your dad and your family in my thoughts and prayers.
Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.
cmego ( member #30346) posted at 1:54 AM on Tuesday, June 10th, 2014
me...BS, 46 years old.
Divorced
sad12008 ( member #18179) posted at 3:32 AM on Tuesday, June 10th, 2014
(((nik)))
You and your family are in my thoughts.
You can't fill a cup with no bottom.
nowiknow23 (original poster member #33226) posted at 4:37 PM on Tuesday, June 10th, 2014
Talked to Dad last night. He sounded good - he was clear and focused, understood what was going on, had good energy (all things considered), and his sense of humor was back. There are still concerns with the hemoglobin level. After Sunday's transfusion, his level was up to 9.1. Not terrific, but better than where he was when he was admitted. They are keeping a very close eye on it. The infection is responding to the IV antibiotics, so that's another bit of good news.
Thank you all for the support. 
You can call me NIK
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
abbycadabby ( member #27428) posted at 4:47 PM on Tuesday, June 10th, 2014
(((NIK and family)))
Toward the end of my grandfather's life, he was on a cocktail of medications for his various ailments. Diabetes. Heart Disease/congestive heart failure. Decreased renal/lung function. Idk all his diagnoses or all of the drugs he was on, but he actually had an issue with drug interaction causing confusion, delirium/hallucinations, etc. Could that be an issue with your dad?
**disclaimer: I am no doctor and this was 11 years ago so if I've got erroneous terminology, I apologize in advance.
Jrazz ( member #31349) posted at 6:12 PM on Tuesday, June 10th, 2014
That's really good news. 
I'm so glad that you were able to talk to him while he is feeling better.
"Don't give up, the beginning is always the hardest." - Deeply Scared's mom
LosferWords ( member #30369) posted at 6:18 PM on Tuesday, June 10th, 2014
Glad to hear they were able to get him stabilized a bit, and you were able to talk to him.
Sending continued thoughts, strength, and mojo.
nowiknow23 (original poster member #33226) posted at 8:46 PM on Tuesday, June 10th, 2014
he actually had an issue with drug interaction causing confusion, delirium/hallucinations, etc. Could that be an issue with your dad?
We had a similar issue with my mom several years ago, so I understand what you're describing. Dad's doctors are confident his confusion was due to the infection and his low hemoglobin. He hasn't had any med changes (other than the IV antibiotics they started in the hospital) for a very long time, and he has been alert and coherent on those meds up until this crisis. The fact that he was back to himself a day after starting the antibiotics and getting the second transfusion seems to back that up.
You can call me NIK
And never grow a wishbone, daughter, where your backbone ought to be.
― Sarah McMane
authenticnow ( member #16024) posted at 8:48 PM on Tuesday, June 10th, 2014
DS, you are forever in my heart. Thank you for sharing your beautiful spirit with me. I will always try to live by the example you have set. I love you and miss you every day and am sorry you had to go so soon, it just doesn't seem fair.
kiki1 ( member #37184) posted at 8:51 PM on Tuesday, June 10th, 2014
abbycadabby ( member #27428) posted at 9:44 PM on Tuesday, June 10th, 2014
Good. I'm glad he's being closely monitored and that there have been improvements.
Prayers and hugs still!
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