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tushnurse ( member #21101) posted at 7:55 PM on Friday, October 16th, 2020

No you don't need a fiber supplement.

He has issues from a spinal cord injury, not from normal issues.

YOU need to go back to the bowel routine you were doing when this was done, and if for some reason he doesn't have a BM then you add in a dose or two of something Magnesium based to alter the ions and push that stuff through.

As far as the Xray results we call that FOS (Full of Stool or the other word lol).

Did you tell them what you do normally for him and how long you have been on that routine?

Are they still going to do a colonoscopy? If so why are they not prepping him? Was the metal still visible on today's films?

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8598591
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number4 ( member #62204) posted at 7:59 PM on Friday, October 16th, 2020

“It's a combination of the SSRI antidepressant fluoxetine (Prozac) and another drug approved for bipolar disorder and schizophrenia called olanzapine (Zyprexa). Aripiprazole (Abilify), quetiapine (Seroquel), and brexpiprazole (Rexulti) have been FDA approved as add-on therapy to antidepressants for depression.”

I've never heard that Seroquel is a combination of Prozac and Zyprexa. I spent years going to DBSA (Depression and Bipolar Support Alliance) weekly meetings, and knew a lot of people on Seroquel. None of them ever said anything about it being an SSRI. Not sure where you read this. Same with Zyprexa.

Seroquel, when it works, helps a lot of people (didn't work for me when I tried it many years ago for depression/anxiety). It does knock you out at night, so people often appreciate its sedative effects.

Zyprexa is an interesting drug. I am currently on a very low dose of it (2.5mg), along with an SSRI (Zoloft). Zyprexa, at very low dosages, works well for anxiety. The problem is, it can cause an increase in appetite, and weight gain. That can lead to pre-diabetes (which I now have even though I've lost 30 of the pounds I put on after being prescribed Zyprexa). At its worse, it can cause diabetes; I am now on Metformin.. low dose. So you have to be careful with Zyprexa, but it does work really well for anxiety.

This all being said, all of his doctors should be fully aware of all the medications he's on. You'd think each one of them should look at this list every time they come into a room to talk to you or him, but that doesn't always happen. So yes, you should be bringing them up each time.

Me: BWHim: WHMarried - 30+ yearsTwo adult daughters1st affair: 2005-20072nd-4th affairs: 2016-2017Many assessments/polygraph: no sex addictionStatus: R

posts: 1433   ·   registered: Jan. 10th, 2018   ·   location: New England
id 8598598
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ZenMumWalking ( member #25341) posted at 8:13 PM on Friday, October 16th, 2020

WR - please get it through your head that these CLOWNS are talking about people with the 'usual' (or 'more typical') bowel issues.

YOUR WH HAS SPINAL CORD INJURY BOWEL ISSUES - NOT TYPICAL ISSUES!!!!!!!!!

So every time one of these asswipes give you suggestions - like metamucil or joke doses of miralax - ask them whether this is advice for a spinal cord injury patient, because you have been doing xyz for n years with good results (until this episode).

So can they please explain why doing LESS than that should be yielding the desired results.....

?????

In the nicest way possible of course!!

((((WR))))

Me (BS), Him (WH): late-50's
3 DS: 26, 25, 22
M: 30+ (19 1/2 at Dday)
Dday: Dec 2008
Wanted R, not gonna happen (in permanent S)
Used to be DeadMumWalking, doing better now

posts: 8533   ·   registered: Aug. 28th, 2009   ·   location: EU
id 8598612
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 WhatsRight (original poster member #35417) posted at 8:59 PM on Friday, October 16th, 2020

The doc says there will be a scope. Mentioned pouring gallons of stuff if required.

Same doc has now ordered enemas. Does she think that is gallons of stuff?

She will not be here tomorrow, so...back to square one as far as explanations / questions / future plans.

I’m also waiting to find out what happens if the ring doesn’t get expelled. Will they leave it in? I know intestinal surgery is scary. Could the ring be damaging over time? We don’t k ow if it’s gold, and / or what alloy might be in it. Could it be toxic?

I am nervous that they might be considering just leaving it in there if the colon cleanses don’t bring it out.

Tush...what you said about fiber supplement made sense - thanks for that!

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8598638
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ZenMumWalking ( member #25341) posted at 9:22 PM on Friday, October 16th, 2020

I am nervous that they might be considering just leaving it in there if the colon cleanses don’t bring it out.

Ask them about it - will they take another xray after they thing everything is cleaned out just to make sure?

((((WR))))

Me (BS), Him (WH): late-50's
3 DS: 26, 25, 22
M: 30+ (19 1/2 at Dday)
Dday: Dec 2008
Wanted R, not gonna happen (in permanent S)
Used to be DeadMumWalking, doing better now

posts: 8533   ·   registered: Aug. 28th, 2009   ·   location: EU
id 8598646
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 WhatsRight (original poster member #35417) posted at 5:23 AM on Saturday, October 17th, 2020

Latest plan...

More “cleansing” tomorrow, then colonoscopy prep on Sunday, then the actual scope on Monday.

One bit of good news...they intend to do whatever they can to recover the “jewelry” in his colon!

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8598805
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Adlham ( member #53358) posted at 5:50 AM on Saturday, October 17th, 2020

Hey WhatsRight, there is a risk for drug interactions with seroquel and tramadol.

I would just bring it up with them. And like I said, I'm overly cautious with tramadol.

And your husband being so medically fragile, I just feel a little protective of you both.

Especially because I agree with TushNurse that they cannot treat him like other people because he has spine and nerve issues.

I know what mine do to me. I know he is much worse than I am. It is concerning that they don't seem to understand that. And it's the most important thing about him when it comes to his, um, bowels.

Sending love.

There is NO need to have that “one last conversation” with a toxic individual in your life.” The closure will come when you look deeper inside yourself. It’s not your job to fix someone when they are unwilling to fix themselves.

posts: 1821   ·   registered: May. 24th, 2016   ·   location: Pacific Northwest!
id 8598811
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 WhatsRight (original poster member #35417) posted at 2:39 PM on Saturday, October 17th, 2020

Adlham... I definitely will ask about those 2 drugs re interactions. Thanks.

The newest interesting “happenstance”.

They come in this morning with “breakfast”, i.e. broth, juice, popsicle, and Italian ice.

But no, this morning, during colonoscopy prep, he got fruit, scrambled eggs, and...wait for it................. sausage!!!!!!!!

(I haven’t allowed sausage to pass his lips for 5 or more years!)

I said, “Uhhh...no.”

I went to a nurse and they freaked a little bit.

10 minutes later...in comes the chicken broth...et al.

Good times!!!

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8598852
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 WhatsRight (original poster member #35417) posted at 8:34 PM on Saturday, October 17th, 2020

I told my friend this story from my last post. She says I should be at home resting and let him take care of himself.

I said, “if I wasn’t there, he would’ve eaten sausage, and would probably be dead right now!“

She said, “But you would be rich because of malpractice!“

🤔

I’m kidding!!!

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8598964
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ZenMumWalking ( member #25341) posted at 10:16 PM on Saturday, October 17th, 2020

Me (BS), Him (WH): late-50's
3 DS: 26, 25, 22
M: 30+ (19 1/2 at Dday)
Dday: Dec 2008
Wanted R, not gonna happen (in permanent S)
Used to be DeadMumWalking, doing better now

posts: 8533   ·   registered: Aug. 28th, 2009   ·   location: EU
id 8598999
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 WhatsRight (original poster member #35417) posted at 10:41 PM on Saturday, October 17th, 2020

Got told by the latest doctor that H was only getting the colonoscopy in order to retrieve the ring. Otherwise, could have already gone home???

Last dr who looked at last X-ray said he was still full of .....

This dr says no. Scope is just to retrieve ring.

So confusing. I hope it’s the Hope Diamond!

Said he was FULL of gas...yeah...I didn’t say anything!

How do I get rid of that? Well he is so dormant. Get him to move more. AND GasX.

Anyway, after the scope, I will ask about any more impaction. If there is, I will refuse to take him home. Or if there is any sign of sepsis or c-diff.

I’m also DEMANDING a lesson in how best to balance all the meds to avoid this in the future.

The “end” is in sight...or at least will be on Monday AM.

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8599004
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Adlham ( member #53358) posted at 3:02 AM on Sunday, October 18th, 2020

Picture me slamming my head against a wall.

Wow.

Sending love.

There is NO need to have that “one last conversation” with a toxic individual in your life.” The closure will come when you look deeper inside yourself. It’s not your job to fix someone when they are unwilling to fix themselves.

posts: 1821   ·   registered: May. 24th, 2016   ·   location: Pacific Northwest!
id 8599058
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Lionne ( member #25560) posted at 3:43 AM on Sunday, October 18th, 2020

I'm checking in on you several times a day. And holding you in the ******LIGHT******

Me-BS-71 in May HIM-SAFWH-74 I just wanted a normal life.Normal trauma would have been appreciated.

posts: 8533   ·   registered: Sep. 18th, 2009   ·   location: In my head
id 8599065
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 WhatsRight (original poster member #35417) posted at 1:54 PM on Sunday, October 18th, 2020

Adlham...you crack me up.

It never ceases to amaze me how a difficult situation can provide such support, develop / deepen relationships (even online), and provide humor to be able to get through it.

Y’all are amazing people.

In a perfect world, we could hang out and I could give you all big ‘ole hugs!!!

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8599125
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ZenMumWalking ( member #25341) posted at 3:37 PM on Sunday, October 18th, 2020

In a perfect world, we could hang out and I could give you all big ‘ole hugs!!!

In a perfect world, the docs would not be so full of shit!!!

Me (BS), Him (WH): late-50's
3 DS: 26, 25, 22
M: 30+ (19 1/2 at Dday)
Dday: Dec 2008
Wanted R, not gonna happen (in permanent S)
Used to be DeadMumWalking, doing better now

posts: 8533   ·   registered: Aug. 28th, 2009   ·   location: EU
id 8599144
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 WhatsRight (original poster member #35417) posted at 8:32 PM on Sunday, October 18th, 2020

Zen...Perfect terminology for this situation. 😂

Great news...Blood cultures show no sepsis or c-diff!!! I was really concerned about those with so much antibiotics.

Now to finish drinking the stuff that he was going to have to drink, then not going to have to drink, and is now 1/4 of the way through.

If all goes well with the scope tomorrow...maybe home tomorrow!!!

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8599229
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Jeaniegirl ( member #6370) posted at 9:02 PM on Sunday, October 18th, 2020

Hang in there!!!

"Because I deserve better"

posts: 3731   ·   registered: Feb. 1st, 2005
id 8599232
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 WhatsRight (original poster member #35417) posted at 7:36 AM on Monday, October 19th, 2020

Ok...so I will state up front that you will not believe this...and you may think I have a strange fetish. I’m just sayin’.

So you know an X-ray found a metal looking ring in my H’s pelvic area. I think they still aren’t certain it’s in the colon because an X-ray doesn’t show that up.

Tomorrow will be a colonoscopy to search for what it is and remove it. I hope, hope, hope it is in the colon and not just in the abdominal cavity. I don’t think it’s possible because he has had no surgeries.

Anyway, everyone at the hospital seems (as do I) perplexed as to how it got there. I have decided that maybe on a cold day when I was giving H his pills, a ring fell off my finger into his mouth. He takes sometimes 6-8 pills at once, so maybe he didn’t notice???

That’s the best I’ve got.

So, today was the prep / cleanse for the scope tomorrow. As genteel as I can say it, once when the cleans was working, shall we say, I was on clean up, and something comes rushing out with the fluid. About 1 1/2” long and maybe 3/4” wide. It was white plastic. Flat. Had a small hole at the top, which tapered to a narrow slit going down from the round hole.

Showed the nurses. They were perplexed. I think in disbelief, one nurse said it looked like an IV clamp. (I googled and it is)

What the hell???

We (me and 2 nurses) looked all around his bed and IVs and all the wires and tubes, but nothing like that thing was to be found. Or missing from something.

I told them I would have wondered if it could have been in the bed, and just rolled out with the fluid...but I swear - because I was cleaning up at the exact time, I actually saw it pop out. If I knew how to post a pic I would show it to you.

The nurses and I couldn’t figure out what in the world happened. They left and I kept it.

I wondered if I had imagined it, and/or if people were beginning to wonder about me...considering they already saw a perfectly round thin wedding ring type ring on the X-ray. Do they think I’m putting things inside my H? Or that I have Munchhausen syndrome?

So, the nurse said, in answer to my question, that no - that object couldn’t be the metal looking ring on the X-ray.

I guess we’ll find out in the morning when they do the scope.

Why do these things happen in my life?

Friggin’ weird.

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8599371
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tushnurse ( member #21101) posted at 1:56 PM on Monday, October 19th, 2020

Good Luck today.

Sounds like the prep went well. I'm not sure what is going on, are you sure your H isn't swallowing things he shouldn't be?

Trust me people do, and do so for a number of reasons. When I was tushnurse I had several repeat customers come in for retrieval of things family realized they had swallowed. Change, batteries, pieces of eye glasses, springs from ballpoint pens.... the list goes on and on.

Me: FBSHim: FWSKids: 23 & 27 Married for 32 years now, was 16 at the time.D-Day Sept 26 2008R'd in about 2 years. Old Vet now.

posts: 20380   ·   registered: Oct. 1st, 2008   ·   location: St. Louis
id 8599411
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 WhatsRight (original poster member #35417) posted at 2:03 PM on Monday, October 19th, 2020

You know, when I found it I asked him, “H, you’re not eating weird stuff, are you?”

But I was making a joke.

What you are talking about...is it for attention?

I cannot imagine him doing such a thing when he is so badly wanting to get rid of the chronic pain in his abdomen.

"Noone can make you feel inferior without your concent." Eleanor Roosevelt

I will not be vanquished. Rose Kennedy

posts: 8268   ·   registered: Apr. 23rd, 2012   ·   location: Southeast USA
id 8599415
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