SurvivingInfidelity.com^®

Sending prayers!

Here, PCP and specialists (urologist, gastroenterologist, and neurologist- who did the nerve block) are totally separate. The “hospitalists” here will send test results to specialists, but the regular docs can have nothing to do with the patient in the hospital in the way of procedures and / or advice.

Just wanted to say my hospital does it this way but it doesn't mean that they aren't in communication with outside doctors. In fact, we are having an outside oncologist come in to talk to a pt and his family this weekend because he is more comfortable hearing prognosis/plan from his own doctor (as he should). Official care is still directed by the hospital staff for billing/insurance/liability issues, but only in rare cases do they not follow the recommendations of the doctors/caregivers outside the hospital.

(((hugs to you and your husband)))

Thanks for all the well wishes.

We are waiting on blood cultures to know exactly what’s happening.

One guy in the ER said he thought he was septic due to having a fever???

What a MORON.

Picture gif of the geico commercial "that's not how any of this works"

He has a fever due to infection. Where the infection is can be anyone's guess. Theron concern is that there is an infection secondary to the bowel issue. Which is the worst infection a person can have. Si make sure they are keeping him hydrated and giving meds.to keep his gut pushing things through.

Lots of fluids IV and keeping a close eye on him will help. I have wished for people to poop far too many times in my life. Lol. Come on Mr WR poop already.

Had to give meds to reduce blood pressure.

Still haven’t seen or talked with a doctor. 😡🤬😡

We are here. I hope you can get some sleep!

Help!

They are going to send my husband home this afternoon when he has not been to the bathroom. They have given him about 84 different kinds of ways to make him go to the bathroom and he hasn’t gone. And they’re telling him that if he keeps it down a liquid diet, which was lunch today, one meal, that they were sending him home this afternoon.

They can’t get him to poop and with all of their medicine yet they’re sending him home.

What in the world can I do to stop this from happening?

If he has Medicare you can appeal the discharge. Or you could just flatly refuse to take him home and let them know your next call will be to all of the TV stations to make it public. Is he still in the ER? Or in a hospital room?

Not all nerve blocks take. Was his done under fluoroscopic guidance?

Assuming the injection was successful--reached the correct target--keep in mind that it includes short-acting local anesthetic that does, indeed, wear off quickly. So, the 80% improvement he had immediately post-injection wasn't an improvement destined to last. As the longer-acting steroid takes effect, it may be reached again (or surpassed). So there is hope to be held out.

In the meantime, there can be temporary increased soreness from the trauma of injection until that steroid reduces the inflammation.

And there's always the chance it just didn't get the right spot. It happens.

Is he in the care of a really excellent pain management team? Like, a group devoted 100% to pain relief, preferably university-based (if distant, then their recommendations can be carried out closer to home)? There are so many new modalities---injections are great, but just the tip of the iceberg.

Whatsright, I hope your H is better -- and how are you?

Thank you SO MUCH for your well wishes. This has been a difficult experience.

After I spoke with my husband… When he told me they were sending him home, I called the hospital. Luckily, his nurse answered the phone. I always try to give someone an “out“ before I get angry with them. And I’m glad I did. I told her that I had heard from my husband and that I thought maybe he misunderstood. Because he told me that he would be coming home today whether or not he had been able to successfully go to the bathroom.

I told her I had no idea how to care for him because that is why we went to the hospital in the first place.

She was very very kind and said that yes, he had misunderstood. She said the doctor came back and said there were two prerequisites that must be met before he was released. First of all, he was to hold down his full liquid lunch without becoming nauseous or vomiting. And the second thing was that he must empty his bowel. And she said, “Both of those things have happened.”

Wow, was that a relief! (For him too, I imagine!)

So he came home yesterday afternoon. He has not been complaining about pain. He did ask for a Valium before bed so he could settle down a bit. He has been taking very small amounts of Valium from time to time ever since his injury and 46 years ago. So, no abuse there.

I told him what. I thought his schedule should be from here on out. When to take which medicines, when to be up, when to be back in the bed, what he should be eating, where he should be going and what he should be doing. I ask him what he thought and he agreed to every bit of it without any argument.

This morning he seems fine. No upset. No irritability.

I don’t think it could’ve turned out any better, although I continue to be concerned about this repeated issue with his intestines.

Anyway, thanks for being there and letting me vent and all the great ideas and information. I have come to depend on you all so much, I’m not sure what I would do without you! ❤️❤️❤️

If he has Medicare you can appeal the discharge. Or you could just flatly refuse to take him home and let them know your next call will be to all of the TV stations to make it public. Is he still in the ER? Or in a hospital room?

YOU always have the right to appeal the DC, or you can say "I don't think it is safe to take him home now." A Safe Discharge plan is essential. If you feel unable, or unsafe taking him, then the hospital DC planners have to work w/ you to come up w/a reasonable plan. PERIOD. If you appeal the DC then you get another 24-48 hours in hospital while records get sent to a third party to evaluate his needs.

Oh, and regarding the sepsis...

Tush, you were so right! MORONS!

The doctor that we spoke to yesterday, when I asked him about sepsis, said that he had no concerns about my husband having sepsis.

I said, “but the doctor in the ER said…“ The doctor we were speaking to interrupted me and said in a diplomatic way… ER staff tend to be very low threshold with concern to sepsis. If they feel there is any indication, they start anabiotic‘s because it is so much more successful in saving patients if they get a quick start to battling it.

Well shit! Now what do we do to do to get my heart out of my throat after telling me something like that!

Anyway, he said exactly what you said to it… That all four symptoms...fever, two or more different infections present, rapid pulse, and lower blood pressure, must be present in order for sepsis to be strongly considered.

So I guess we dodged that bullet also!

I want to say, “God is good!”. And I know He is. But I also know that not everyone has been having such good outcomes to difficulties in this horrible time, and I know for sure that we are no more deserving of a positive outcome than anyone else.

🙏🙏🙏 for all of us!!!

Glad it's better for you both! I was just coming in to check for updates and to let you know that I am thinking about you, my sweet friend 💜💜💜

Much love to you!

Good news! And I hope you managed to get some rest.

We cross posted this am.

Glad things resolved the way they should have.

Just remember they will never put your H out on the curb when he is in the hospital. That's illegal. Don't panic. Always ask for the Discharge planner if you don't think the plan is appropriate.

Glad his nurse was one that could explain things and get you all on a path to home.

Wow WR what a rollercoaster!!!!!

And just to +1 what HF and tn said - don't be afraid to speak up for WH and for yourself. If there is something you don't understand, they don't get to leave before they explain it to you.

Just because they're physicians doesn't mean they can't be MORONS!!!!!

((((WR))))

Back to the ER.

Severe pain.

Racing pulse. 130

Low bp 66/44

Fever 101.2

Just the things they told me were indicators of sepsis.

When they were taking him, one of the EMTs asked what his bp was. The guy said, “I can’t find it.”

In a room at ER now. Bp is more normal.

Distended abdomen.

Drugs for pain. Lung X-ray - I think concern about COVID...but no test.

Dr came in and asked if H had swallowed anything metal. Says something is showing up metal in his intestine. Says it has moved since 4 days ago.

Geez!

Now they are talking sepsis again, and are overloading with antibiotics.

Are admitting him again.

I’m VERY concerned about c-diff as a result of the antibiotics - especially considering the fact that he has been using opioids so long and the colon hasn’t had time to recoup at all because he has only been opioid free for 1 week.

His mom died from c-diff.

I am vacillating between fear and anger. I can’t understand if he’s not going to get to enjoy his nerve block, new wheelchair, and get to live at least a while enjoying his grandkids and being somewhat pain free.

When he is so close.

Honestly...I’m pissed.

I'm so sorry to hear this. Praying the doctors get to the bottom of what's causing all of this.

Sont forget to take care of yourself too. Hugs.