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Somanyyears had a seizure

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somanyyears posted 8/20/2019 09:10 AM

..Thanks for your input Marriagesucks. I'm right on board with your experience. Take that mask and stuff it!!!

..As for having a 'seizure'.. what the FUCK is going on here???

Captured by space aliens maybe???

I'm taking the meds and a little weed...

I'll be OK... the broken arm doesn't help at the moment!

...and a shout out to Mangled Heart and DS for this wonderful website...


DragnHeart posted 8/20/2019 10:22 AM

Hey smy glad to see you posting.

Also happy that you're taking the meds (and some weed lol).

Not sure what to think about the seizures. Gotta be horrible and scary. Hopefully the testing will come up with answers for you.

Still saying prayers and sending you mojo.

Carissima posted 8/20/2019 14:13 PM

I must admit I had no clue about these machines so I looked them up and oh god...they look like instruments of torture. I did see there are ones designed for side sleepers, back sleepers even face sleepers but couldn't see anything that suggests what to do if you're a restless sleeper who does ask of the above!

I have no idea what I'd do. I couldn't adapt to an oxygen mask after a major operation. Hell, I even hated the feeling of a silk eyemask I tried using when I worked nightshift at one point in my life.

I hope you find something that works so both of you can get the rest you need.

As for the break, if you've still got some swelling or bruising try applying some arnica. It's a topical treatment, just make sure to get some that's high grade. It's a homeopathic remedy that works!

sisoon posted 8/20/2019 20:04 PM

If it means anything, I found the lowest pressure entirely too much, and I found the smallest mask to be oppressive.

But my apnea is mild, and no seizure. If my life were at risk, I think I'd take the risk, though I think I'm a little older than SMY.

But the risk isn't just death. I believe the bigger risk is stroke, which means potential fo a terribly lowered quality of life and a terribly increased demand on my W and bank account.

So I hope SMY can find a way through this.

I was able to find a ear, Nose, Throat doc who was able to identify the actual blockage. That opened up some different options - surgery, a dental appliance, IIRC. Is a consult with an ENT doc possible. Or did it already happen?

looking forward posted 8/20/2019 20:14 PM

Hi sisoon,
I think seeing an ENT is an excellent suggestion; I will contact our dentist (with whom we have a close relationship) and see if she can offer her professional advice, too.
Today's medical visit produced a referral to a neurologist and further x-rays for the arm, plus bloodwork to check Dilantin and albumin.
Now, getting smy to the specialist.....hmm

He says he will try the CPAP again tonight.
He has severe obstructive sleep apnea.
Little baby steps...

hopefull77 posted 8/30/2019 07:04 AM

Just checking in to see how things are going!An ENT sounds like a good idea just for another opinion.

looking forward posted 8/30/2019 12:07 PM

Dilantin dosage increased last week following blood test results
Not using the CPAP
Trying to sleep more on his side
Lots of pain with fractured humerus (which is healing)
MRI last Friday, awaiting results
No notification yet of neurologist referral

Thanks to all for your support and concern!

Cooley2here posted 8/30/2019 13:27 PM

My husband loves his CPAP machine. Has used it for years. He says it saved his life. I tried and tried to use mine and it does not help me. If you canít sleep because of it itís not doing any good. I highly recommend you get a recliner and sleep in that. I had a torn rotator cuff years ago and my doctor told me the most comfortable place to sleep was in the recliner. I have slept in it since then and I donít have sleep apnea as long as I sleep there. If yours is from a throat closure it works. If itís like my husband whose brain forgets to tell him to breathe then you need that apnea machine.

StillLivin posted 9/1/2019 14:59 PM

The respiratory therapist told me to put it on during no sleep time for a half hour a day everyday...while watching TV, doing homework, etc. I was to increase the time gradually to over an hour within 2-3 weeks. It's supposed to help you get conditioned to wearing it. When I am able to sleep with it on, which is most nights now, it is easier. But some nights, I just dont feel like dealing with it. Kwim. If he's willing, maybe this will help him adjust to sleeping with it. I still can't sleep on my back with the damn thing on, but on my side I'm good now.

looking forward posted 9/1/2019 16:20 PM

Hi StillLivin,
What you described is exactly what the CPAP rep suggested to smy back in July!
Maybe now he will try it during the day while watching his favourite Pickers episodes.

StillLivin posted 9/2/2019 03:38 AM

Men are so stubborn.

somanyyears posted 9/2/2019 10:04 AM

.. charged!!

Reading about so many other people having to deal with this machine is 'eye opening'

It's a bit mind-boggling to think my brain could forget to remember to breathe while I'm sleeping...forfucksakes

...but the thoughts of dying have NOT been in my wheelhouse until, could dying in my sleep be better than wasting away alone in some old age home, sitting in a soiled diaper at 97??? Hmmmmmmm?

Never gave it much thought ...before now.

Wearing the mask during the day is possible but not probable. Can't talk, can't eat, can't drink, can't move get the idea...

The whole thing is a Royal pain in the arse!

But....I really, really want to thank everyone who responded with their knowledge and experiences and sympathy for our situation.

The brotherhood/sisterhood that exists here at SI is unparalleled.

Still waiting for MRI results.. will let youzall know.


looking forward posted 9/6/2019 19:48 PM

MRI results normal.
Still awaiting appointment with neurologist.
Arm is healing but complaining of pain; arm is weak. No doubt, he has frozen shoulder (BTDT myself 3 times with torn rotator cuff).

All in all, it's been a very stressful summer and continues to be.

Thanks to all for your continued support and advice!

[This message edited by looking forward at 9:09 PM, September 6th (Friday)]

hopefull77 posted 9/7/2019 07:41 AM

Thanks for the update! Happy to read MRI normal!

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