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Somanyyears had a seizure

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northeasternarea ( member #43214) posted at 7:31 PM on Tuesday, July 9th, 2019

Happy Belated Birthday! Both of you will sleep much better with the CPAP.

The only person you can change is yourself.

posts: 4263   ·   registered: Apr. 23rd, 2014
id 8403661
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somanyyears ( member #26970) posted at 10:00 PM on Tuesday, July 9th, 2019

..crap...it's over a month with no wheels

@ sportsfan.. The mask totally sucks... pushes more air in than I want, so it puffs out my cheeks.. takes away my natural rhythm of breathing.. haven't lasted long enough to fall asleep yet..??

Lately it's been hot,hot,hot so the mask is stifling and unwearable right now.

I'll give the nose-only mask a try to see if I can tolerate it. If I can't even fall asleep within a reasonable time, screw it..

...and thanks for the birthday wishes people..

smy

trust no other human- love only your pets. Reconciled I think! Me 77 Her 74 Married 52 yrs. 18 yr LTA with bff/lawyer. Little fucker died at 57.Brain tumour!

posts: 6077   ·   registered: Dec. 29th, 2009   ·   location: Ontario Canada
id 8403724
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StillLivin ( member #40229) posted at 7:41 AM on Thursday, July 11th, 2019

The amount of air should be adjustable. I actually had the opposite problem, wasn't getting enough, initially. Reschedule to have the air pressure adjusted. Better to take it down slightly more than you need and gradually increase it than to be blasted every night.

"Bitch please a good man can't be stolen." ROFLMAO - SBB: 7/2/2014

posts: 6217   ·   registered: Aug. 8th, 2013   ·   location: AZ
id 8404390
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Cooley2here ( member #62939) posted at 6:01 PM on Friday, July 12th, 2019

It depends on what kind of apnea you have. My husband’s brain forgets to tell him to breathe. He has worn a CPAP for years and is so comfortable with it that is soon as he puts it on and lies down he’s asleep. Mine is because my throat closes up. They could not get the mask tight enough, and the air pressure strong enough to Work so I sleep in a recliner and I do fine. You need to find out what kind of apnea you have

When things go wrong, don’t go with them. Elvis

posts: 4540   ·   registered: Mar. 5th, 2018   ·   location: US
id 8405085
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somanyyears ( member #26970) posted at 6:10 PM on Friday, July 12th, 2019

..thanks everyone.... your insights and experience with this contraption is very helpful.

I'm getting a 'nose only' mask on Tuesday and we'll see how it goes.

"You need to find out what kind of apnea you have."

It's the kind that REALLY PISSES ME OFF!!!

smy

trust no other human- love only your pets. Reconciled I think! Me 77 Her 74 Married 52 yrs. 18 yr LTA with bff/lawyer. Little fucker died at 57.Brain tumour!

posts: 6077   ·   registered: Dec. 29th, 2009   ·   location: Ontario Canada
id 8405087
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 looking forward (original poster member #25238) posted at 9:50 PM on Friday, July 12th, 2019

You need to find out what kind of apnea you have

Severe Obstructive Sleep Apnea

Averages 45.7 obstructive events per hour!

Together more than 57 years, Married 52 years. Sober since 2009. "You've always had the power, my dear, you just had to learn it for yourself." (The Wizard of Oz)

posts: 3619   ·   registered: Aug. 20th, 2009   ·   location: Where a river runs through it
id 8405174
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JustDone ( member #9742) posted at 3:57 AM on Sunday, July 14th, 2019

Hi smy, I just wanted to pass along that my child with chronic obstructive sleep disorder was first put on a nose-only mask and later, under observation it was determined that on that type of mask she started mouth breathing at night, thus was still not getting enough oxygen.

It was bad enough that she was diagnosed with polycythemia, where her body was so oxygen deprived her bone marrow amped up the production od red blood cells to try to carry more oxygen to her organs. Her Yale pediatric hematologist thought she might have cancer before they figured it all out.

She had to have a full mask after that. I hope the nose-only machine works for you, but please give the machines a chance.

Wishing you well, fingers crossed for no more seizures and I'm hoping you have a very successful nose-only CPAP machine experience.

Madhatter
Forgiveness is giving up the possibility of a better past.

posts: 3058   ·   registered: Feb. 12th, 2006
id 8405654
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dreamlife ( member #8142) posted at 9:14 PM on Wednesday, July 17th, 2019

big hugs!

~XWH told me what I wanted to hear but he always did whatever he wanted to do~

"He called me a bitch.
I called him an ambulance."
Linda H.)

posts: 26209   ·   registered: Sep. 7th, 2005
id 8407217
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somanyyears ( member #26970) posted at 3:06 AM on Thursday, July 18th, 2019

..@ JD... I'm sorry that your daughter is dealing with this apnea situation. I'm learning that it is a widespread and common ailment.

Thanks for your kind advice and knowledge. If using the damned mask will help get my driver's licence back, I'll put up with it!

@ dreamlife... hugs we can never get too many of... thanks for the support, not just now but for the years we share here..

smy

trust no other human- love only your pets. Reconciled I think! Me 77 Her 74 Married 52 yrs. 18 yr LTA with bff/lawyer. Little fucker died at 57.Brain tumour!

posts: 6077   ·   registered: Dec. 29th, 2009   ·   location: Ontario Canada
id 8407368
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DragnHeart ( member #32122) posted at 9:13 PM on Monday, July 22nd, 2019

Glad to see you ar doing better.

How about the alien CPAP mask? Looks like one of the face huggers from the movies. I'm 100% sure Wh would wear that if he needed one just so he could freak me out. (Although he would risk me beating him with a hammer if I woke to see that alien thing on his face hahaha).

Me: BS 46 WH: 37 (BrokenHeart911)Four little dragons. Met 2006. Married 2008. Dday of LTPA with co worker October 19th 2010. Knew about EA with ow1 before that. Now up to PA #5. Serial fucking Cheater.

posts: 25896   ·   registered: May. 10th, 2011   ·   location: Canada
id 8409155
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somanyyears ( member #26970) posted at 5:32 PM on Tuesday, July 23rd, 2019

..Hey D,

Glad to see you back...

...and don't be giving my wife any ideas eh!?

smy

trust no other human- love only your pets. Reconciled I think! Me 77 Her 74 Married 52 yrs. 18 yr LTA with bff/lawyer. Little fucker died at 57.Brain tumour!

posts: 6077   ·   registered: Dec. 29th, 2009   ·   location: Ontario Canada
id 8409545
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 looking forward (original poster member #25238) posted at 11:46 PM on Tuesday, August 6th, 2019

9 weeks ago....now again early this morning...

2 petit mal seizures at home, grand mal seizure in the hospital at 8:30 this morning...

Also broke his left shoulder below the ball joint, so in a tight splint for 6 weeks.

Haven't seen a neurologist yet; hopefully we'll get an expedited appointment.

The CPAP machine: smy wouldn't/couldn't adapt to full mask, then nose only.

Heading back to the hospital now for a couple of hours. In ICU for observation at least for 1 night, maybe 2.

Prayers please and mojo for healing.

Thank you

lf

Together more than 57 years, Married 52 years. Sober since 2009. "You've always had the power, my dear, you just had to learn it for yourself." (The Wizard of Oz)

posts: 3619   ·   registered: Aug. 20th, 2009   ·   location: Where a river runs through it
id 8416406
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minusone ( member #50175) posted at 12:23 AM on Wednesday, August 7th, 2019

(((SMY and LF))). I know that this is very scary . Sending lots of good thoughts, mojo and prayers.

"I did then what I knew how to do. Now that I know better, I do better". Maya Angelou

posts: 8372   ·   registered: Nov. 2nd, 2015   ·   location: USA
id 8416418
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zebra25 ( member #29431) posted at 12:48 AM on Wednesday, August 7th, 2019

Sending good thoughts and prayers.

"Don't let anyone who hasn't been in your shoes tell you how to tie your laces."

D-day April 2010

posts: 3709   ·   registered: Aug. 25th, 2010
id 8416429
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DragnHeart ( member #32122) posted at 12:58 AM on Wednesday, August 7th, 2019

Oh no

Sending prayers and mojo.

Me: BS 46 WH: 37 (BrokenHeart911)Four little dragons. Met 2006. Married 2008. Dday of LTPA with co worker October 19th 2010. Knew about EA with ow1 before that. Now up to PA #5. Serial fucking Cheater.

posts: 25896   ·   registered: May. 10th, 2011   ·   location: Canada
id 8416435
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maise ( member #69516) posted at 1:02 AM on Wednesday, August 7th, 2019

Oh no, I’m so sorry to hear this. I wish somanyyears healing.

BW (SSM) D-Day: 6/9/2018 Status: Divorced

"Our task is not to seek for love, but merely to seek and find all the barriers within yourself that you have built against it."

— Rumi

posts: 970   ·   registered: Jan. 22nd, 2019   ·   location: Houston
id 8416438
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northeasternarea ( member #43214) posted at 1:40 AM on Wednesday, August 7th, 2019

So soy to hear this. Hop you get some answers.

The only person you can change is yourself.

posts: 4263   ·   registered: Apr. 23rd, 2014
id 8416457
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Emotionalhell ( member #39902) posted at 12:01 PM on Wednesday, August 7th, 2019

Sending healing prayers.

I had seizures growing up. Mine were called focal seizures.

When my dr released me from his care ( I was off medication)

He told me to be mindful of how much alcohol and sleep I get. He said drinking and lack of sleep can trigger seizures. I started to have them again later in life( no alcohol involved) when I was having other issues. I came across an article that said an allergy to wheat/gluten can cause over a 100 symptoms including seizures. If you are not getting answer from modern doctors maybe explore some other possibilities

Of course I am not a dr just sharing my experience

Me BS x2. 50ish Divorced WH #1. IHS with wayward #2 Dday #1 Oct. 2014Dday # 2 August 2018. Dday #3 December 17th.

posts: 1780   ·   registered: Jul. 22nd, 2013
id 8416608
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2oldforthis ( member #19825) posted at 1:01 PM on Wednesday, August 7th, 2019

Hugs and prayers for SMY

He did not see what he had in me, what I saw in him I did not have!

Love kills slowly.

posts: 1794   ·   registered: Jun. 10th, 2008
id 8416618
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hopefull77 ( member #43221) posted at 1:30 PM on Wednesday, August 7th, 2019

Oh no I am so sorry to read this...

Thank you for posting and letting us knkw...

Sending you both strength & prayers.

me-BS him-WS

" I will not define myself by what went wrong yesterday when I can draw upon Life and Love right now."

posts: 2885   ·   registered: Apr. 24th, 2014   ·   location: sunny california
id 8416627
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